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04-03-2008, 09:45 PM
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#1
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Member
Join Date: Dec 2007
Location: Seattle
Posts: 11
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Taxol finished last week, when will hot flashes stop?
Okay, I know this has been discussed before but I seem to get lost in the search function. Please forgive me for bringing it up again.
I finished taxol a week ago. My sleep has been greatly disturbed by hot flashes. I am 42 with chemopause. The onc. gave me neurontin. I am looking for input about your experiences with hot flashes and/or neurontin. When did the hot flashes stop? What were your side affects of neurontin?
 Sue |
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04-03-2008, 10:08 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Sue,
I have been on neurontin for about 9 months to help with hot flashes and a few other side effects. It has helped a great deal with hot flashes, keeping in mind that I am being kept in menopause with Lupron, and my body keeps fighting to come out!
The down side to neurontin is possible weight gain. More like probable weight gain for me. But it has been worth it for the benefits overall.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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04-03-2008, 10:13 PM
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#3
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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I couldn't take neurontin, it made me way too loopy. I had hot flashes for about a year after chemo, they were terrible. I'd wake up at night soaking wet, I'd have them all day...I then had about 6 months of peace where I thought it was done with. Then at about the year and half mark, I had my period again for 3 months..then it stopped and the hot flashes started again. They are not nearly as bad as before, meaning not as frequent, and I haven't been woken up at night. Maybe the neurontin will work for you. I was put on it because I had a severe case of shingles that lasted 8 months. I had to get off it after about a month because i felt totall drugged. I was so disoriented that I was really a danger even driving around..sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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04-04-2008, 05:02 PM
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#4
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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It's been 3 years of chemopause for me and i still have hot flashes. Don't take any meds, tried the effexor but it didn't work, so I just learned ways to cool off. I'll let you know if they fianlly end.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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04-08-2008, 02:04 PM
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#5
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Senior Member
Join Date: Jan 2007
Location: UK
Posts: 617
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my period returned 1.5 year later..one day i noticed that i stopped getting hot flushes and few months laetr got my period again
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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04-08-2008, 04:25 PM
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#6
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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My hot flashes stopped maybe 2 months after chemo ended. Like the other ladies, while I was on A/C and Taxol I had HORRIBLE hot flashes. Like every 15 minutes 24 hours a day and I'm NOT kidding. When they stopped they were gone up until just recently. They are back but like Sherry, not nearly as bad. They are annoying yes, but I can live with them. No neurontin or any other drugs here.
Breezy hugs ........................ (see my fanning my arms your way )
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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08-13-2010, 06:46 AM
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#7
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Guest
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Re: Taxol finished last week, when will hot flashes stop?
I had my last taxol last thursday. I have been sick to my stomach and really tired since, Ive actually been in bed for the last 8 days. I felt fine during the 12 weeks of taxol so i really don't know whats going on. Anyone else feel terrible after they're last treatment. Also anyone know when you start feeling relatively normal after taxol? Hot flashes are killing me, nose bleeds, joint pain
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