 |
|
10-16-2009, 07:30 PM
|
#61
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dearest Marie, We all knew this day was coming but it just doesn't make it any easier. My heart really reaches out to you at such a difficult time. Oh how I wish I could give you a big hug in person. I felt like I knew Ed from all your postings...he was such a big part of our family & will truly be missed. This is so sad. I send my sincerest sympathies to you and your family. Please get some rest and know how much we all love you. God bless you...your in my continued thoughts and prayers.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
10-16-2009, 07:32 PM
|
#62
|
|
Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Sweet Marie,
Big hugs to you, so sorry for the loss of Ed.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
|
|
|
|
|
10-16-2009, 08:22 PM
|
#63
|
|
Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie,
I have tears in my eyeas and a deep sorrow knowing that Ed has left us. Please continue here with us struggling for the cause. You are part of this family. All my love to you and a big big hug.
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
|
|
|
|
|
10-16-2009, 08:26 PM
|
#64
|
|
Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Maria, although the news was to be expected, I am so sad for you. This has been an extremely difficult year for you and I just want you to know how much I admire your strength and courage. I am sending you a huge hug as I know you will need lots of them to get you through this next phase! Xoxo
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
|
|
|
|
|
10-16-2009, 08:37 PM
|
#65
|
|
Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
This is one of those times when words are not enough. May the love you shared with Ed sustain you through this difficult time. He will be with you always.
Take good care of yourself.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
|
|
|
|
|
10-16-2009, 08:45 PM
|
#66
|
|
Member
Join Date: Jan 2007
Posts: 17
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
I post little, but read often.
I am so sorry for your loss.
My thoughts and prayers are with you.
Karen
|
|
|
|
|
10-16-2009, 09:50 PM
|
#67
|
|
Senior Member
Join Date: Sep 2005
Posts: 208
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie,
My heart weeps with you.
May Ed's halo light your way until you meet again.
With love and wishes for peace,
Dian e
|
|
|
|
|
10-16-2009, 10:22 PM
|
#68
|
|
Senior Member
Join Date: Jun 2006
Location: Oklahoma
Posts: 39
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
I am so saddened by your loss. My prayers are with you and God Bless.
__________________
Ora
_____________
DX 7-5-05, Age 54, Stage 1, Grade 2, ER+ (25%) PR- Her2 neu 3+
Lumpectomy 8-4-05, 2cm tumor, 3 nodes neg, Completed 4 A/C, 4 taxol, decadron (weekly due to steriod reaction) finished 4-17-06
Finished 33 rads 6-5-06, Femara, Started Herceptin 6-22-06
Effexor for hot flashes, Taken off Herceptin Feb 2007 due to low LVEF (44 by Echo) Coreg & Lisinopril replaced bp meds - April Echo back up to 55 Resumed Herceptin 5-21-07.
2010: almost 5 YRS NED!!! Still taking Femara & Coreg. Due to all the CT scans, abdominal aneurysm found & repaired. Something good came out of having cancer.
2013 7+ years NED. Still on Femara
|
|
|
|
|
10-16-2009, 10:33 PM
|
#69
|
|
Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie, You have been in my thoughts and prayers for so long now, and will continue to be. I have checked the website everyday expecting this message about your dear Ed's passing, and yet dreading it. I am so sorry to read of it tonight. I have deep faith in a life beyond this, and I believe that you two will be together again. In the meantime, please take care of yourself as well as you have taken care of Ed. You have deeply touched our hearts. If you can, post now and then, for we will always love you and want to hear how you are doing. You are dearly loved. Hugs, TriciaK
|
|
|
|
|
10-17-2009, 12:06 AM
|
#70
|
|
Senior Member
Join Date: May 2006
Location: Mesa, Az
Posts: 219
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie I am sorry for your loss, but I am so Happy your Man walks in heavens and is swaying as happy as could be, watching over you.
All my Love, rest, recover
Darita
__________________
dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
|
|
|
|
|
10-17-2009, 05:02 AM
|
#71
|
|
Senior Member
Join Date: Jan 2006
Posts: 42
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie, I am so sorry for your loss,you have been such a wonderful strong caregiver for Ed. Please take time now for yourself and get your strength back because you deserve it. Thank you and God Bless You
|
|
|
|
|
10-17-2009, 05:40 AM
|
#72
|
|
Senior Member
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
We have been so honored to be a small part of the amazing relationship you have with Ed. You and Ed will forever be an inspiration and example on how to love in a generous fashion.
I know that you will "do Ed proud", as you move forward with the fight against cancer.
I am sure that he will send you signs to affirm that he is watching over you.
Wishing you peace and calm .....Love ....Lori
__________________
2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
|
|
|
|
|
10-17-2009, 08:03 AM
|
#73
|
|
Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Thank you so much Marie for sharing your thoughts and feelings with us. I am so sorry for your loss. Although I am small in stature my father always called me "small but mighty". I hope someday I am as mighty as you have been through this battle. May God Bless you, Ed and everyone.
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
|
|
|
|
|
10-17-2009, 09:20 AM
|
#74
|
|
Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Sending love your way during your time of loss
__________________
Mary
Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson
|
|
|
|
|
10-17-2009, 11:39 AM
|
#75
|
|
Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
I type this with tears of sadness and joy. I am so sadden that Ed had to leave and go home to the Lord. I know it will be hard to continue without him. I will send up prayers of peace and comfort for you and the family as you deal with the loss of Ed. But I also have tears of joy... Joy that his suffering has ended and he truly has earned his wings. He is waiting now patiently for you to join him in glory when the time is right. God bless and (((hugs)))
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
|
|
|
|
|
10-17-2009, 01:26 PM
|
#76
|
|
Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie,
Like many others I am sad to read your post. Please know I send prayers for continued strength.
It is always mixed emotions with the sadness of the loss and the knowledge that Ed is at peace and you will both
be together in the future.
You have been and continue to be a special sister to all of us. God Watch over you!
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
|
|
|
|
|
10-17-2009, 03:26 PM
|
#77
|
|
Senior Member
Join Date: Aug 2006
Location: Franklin, MA
Posts: 131
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
I am so sorry for your loss, Marie. I will keep you in my thoughts in the days and weeks ahead.
Colleen
__________________
Diagnosed 10-03-2005 (34 wks pregnant, 38 yrs old)
Lumpectomy Nov-2005. 10/18 Lymph Nodes impacted
Mets to liver, spine & femurs (thus being stage IV right from the get-go)
ER-, PR-, HER2+
Taxol/Herceptin/Zometa started Dec-2005. 11 cycles of Taxol.
Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans).
Navelbine (3 wks on/1 wk off) as of Oct--2006 & continued Herceptin (every 3 wks) & Zometa (every 6 wks)
Jan-2007: PET/CT Scan - Stable. Continued Nav. through March-2007, then Herc./Zom. only after that.
June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007.
Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.
|
|
|
|
|
10-17-2009, 04:24 PM
|
#78
|
|
Senior Member
Join Date: Oct 2007
Posts: 1,851
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dearest Marie,
You and Ed are blessed to have found each other and shared so much. You are in my prayers for strength.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
|
|
|
|
|
10-17-2009, 04:55 PM
|
#79
|
|
Senior Member
Join Date: Oct 2007
Posts: 203
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie,
You and Ed are an inspiration to me. You are so strong, so loving, so giving. You and Ed were blessed to be together in this life - and thank you for sharing your strength here with us.
Rebecca
__________________
Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
|
|
|
|
|
10-17-2009, 07:29 PM
|
#80
|
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
I am so sorry to hear your news. My heart and prayers are with you.
k
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 04:40 AM.
|
Linear Mode
