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Old 02-10-2012, 07:44 PM   #1
karen z
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Acupuncture- and for what?

Hi. I tried acupuncture for the first time today (my doctor trained with Andrew Weil so I felt pretty comfortabl. I have to say I enjoyed the procedure!! I know that acupuncture is used for different reasons. I am wondering how many of you:

(1) have had acupuncture
(2) for what reason
(3) do you have it regularly
(4) has it helped (with the issue in question).
Please respond to all four parts of the query so we can compare results.
Thanks,
Karen
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Old 02-10-2012, 09:17 PM   #2
Bunty
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Re: Acupuncture- and for what?

Hi Karen - I'm a believer of the benefits of acupuncture, so below are my answers to your points! My acupuncturist always made it clear to me that they can't cure cancer, but they can help with the side effects - and he always warned me not to believe the 'quacks', and that chemo etc was the best way to manage cancer - the acupuncture would just keep my system 'cool'.

1. Yes - I've been having it now on and off for about 23 years.
2. In recent years it's been to help manage the 'heat' of chemo in my system, and when not having chemo for general well being and boost for my system.
3. Since my mets diagnosis nearly 4.5 years ago, I try to have it every week (except for about 3 months when I was hospitalised after a motorcycle accident).
4. I believe it has helped me get through long bouts of chemo - 8 months of Taxol in 2008 and 5 months of Abraxane in 2011). I was able to live quite a normal life, with no neuropathy issues, and if my WBC seemed low, I would let my acupuncturist know and he would give me a boost to ensure I could get my chemo.

Hope this helps!

Cheers Marie
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dx Dec 2000 dcis 2.5cm clear sentinel node, ER/PR- Her-2+
lumpectomy, 6 cycles AC, 6 weeks rads
October 2007 three x 2.5cm lung mets. 8 months Taxol, started Herceptin and continue. Significant reduction in lung mets.
June 2011 3cm x 4cm liver tumour. Started Abraxane and continue with Herceptin.
November 2011. Finished with Abraxane, continue with just Herceptin. Liver tumour now reduced to 15mm x 12mm. Lung tumour now 10mm x 0.5mm
February 2012. Scans show everything stable, and brain scan clear.
July 2012. PET/CT scans show I'm in remission - no active cancer!
]Dec CT brain cllear, lungs stable, liver tumour has increased to 20mm. PET scans showed active liver met and active lung thinglet, and possible bone met.
Jan 2013 recommence Abraxane, continue with Herceptin.
June 2013 finish Cycle 6 Abraxane, continue with Herceptin. 30% reduction in liver tumour, everything stable.
December 2013. CA15-3 on rise.
February 2014. PET and CT scans show single liver tumour has increased to 35mm. No other activity.
March 2014. Planned for SBRT for liver met, but couldn't have treatment as tumour too close to bowel. Continue Herceptin.
April 2014. Surgeon advises that I am a good candidate for liver resection, so will have operation early May (after camping holiday). Tumour now 44mm x 29mm.
May 7, 2014. Two liver tumours surgically removed. Third of liver removed, and gall bladder. Am I NED?May 2014. Pathology of tumour shows it's now ER+ (95% staining).
June 2014. CA15-3 has decreased to 18 from a pre-surgery reading of 59!
June 2014. Started Femara, continue with Herceptin.
July 2014. Stop Femara due to severe Osteoporosis. Commence Tamoxifen, continue Herceptin. Waiting to hear if I can have Aclasta infusion.
August 2014. CA15-3 has decreased further to 12 - YAY!
October 2014. Aclasta infusion for Osteoporosis. November 2014, CA15-3 decreased to 11. Scans of liver all clear, something new showing up on lung, but just watching at the moment.
November 2015. Started SBRT on solitary lung met.
November 2015. Bone density scan showed very good improvement so back on Femara - yay!
December 2016. 6 treatments of SBRT radiation on lung. Seems to have had some effect.
June 2016. CA15-3 still stable and low at 9.
June 2016. Started subcutaneous Herceptin replacing infusion.
Jan 2017. LVEF dropped to 46%. Stopped Herceptin.
Feb 2017. Started ACE Inhibitor and BETA Blocker. Still off Herceptin.
Aug 2017. Two new mets - Portacaval lymph node and mediastinal lymph node.
Aug 2017. Blood tests show extremely elevated liver enzyme levels. Many tests to investigate.
Sept 2017. Portacaval lymph node blocking liver bile duct causing liver enzyme and Bilirubin problems.
Oct 2017. 8cm stent inserted into liver bile duct. Procedure caused pancreatitis, and hospitalised for 3 days. Liver enzymes improving rapidly.
Nov 2017. Commenced 4 weeks of radiation on Portacaval lymph node. 5 week break before chemo.
Jan 2018. CT scan. 11 new small liver mets, and new superclavical lymph node med.
Jan 2018. Start Kadcyla. CA15-3 426.
Apr 2018. First scans since starting Kadcyla. All tumours reducing. CA15-3 dropped to 30 from 426.
Dec 2019. Still on Kadcyla, but two small brain mets have been treated in the past month with SRS. CA15-3 stable for 12 months at 11.
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Old 02-10-2012, 09:20 PM   #3
ElaineM
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Wink Re: Acupuncture- and for what?

Go for it !! I have been getting accupuncture for various health problems and injuries by a licensed accupuncturist and naturopath physcian for 13 years. How often I get it depends on my needs. Accupuncture can help with pain, orthopedic issues and various other health problems.
The needles do not go as deep as injection needles and if the accupuncturist is well trained there should be no pain from the needles. Make sure the person doing accupucture is licensed, well trained and a member of a professional accupuncture association.
Take care.
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Old 02-10-2012, 09:28 PM   #4
NanaJoni
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Re: Acupuncture- and for what?

Several years ago - I had a constant cough that was driving both my husband and I crazy. I tried everything - cough suppressants, antihistamines, muscle relaxers, etc. Finally, someone in the college of medicine (where I worked) told me to ask one of our researchers who was Chinese and a master acupuncturist if he would treat me. He did and the cough stopped within a day. Have never had it come back like it was at that time. I'm a believer and would be trying it immediately if I had worsening neuropathy.
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Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
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Old 02-11-2012, 03:53 AM   #5
JennyB
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Re: Acupuncture- and for what?

I have had it a few different times firstly for backache/shoulder pain and more recently to try to move my baby from Breach position when I had to have him induced for starting chemo - it worked. I would also have it after each chemo last year to help with general well being.
I would highly recommend it - even if you just want to de-stress it can really help.
Jenny x
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Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy

Praying the Herceptin is as good as its hype!!
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Old 02-12-2012, 03:14 AM   #6
'lizbeth
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Re: Acupuncture- and for what?

Love it, I had terrible back pain and accupunture was the treatment that eliminated it. I had visited the chiropracter for 2 years and was taking 10 advil per day. Six visits with my Chinese doctor and I was cured.

Another doctor used it to take away the terrible pain from an infection at my drain site after my node dissection. Amazing, within an hour the pain was gone.

My regular accupunturist treated all us cancer patients weekly. I felt so much better with the treatments.
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Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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