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Old 02-04-2012, 04:08 PM   #1
snolan
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Join Date: May 2011
Location: El Paso ,Tx
Posts: 436
surgical drain fell out

My drain fell out on Thrusday. Dr. wants to try a few days without it to see how my skin reacts, since it tends to turn red when I accumulate fluid. It's been 3 days, very tight from fluid, skin is shinny a little pink not red. Dr suggesting pushing up surgery to have expander taken out and silicon put in on Wed. Stressing me out, if I wait and see how skin reacts to fluid accumulation it may get infected and I go out of town next weekend could risk it happening then. If I have it taken out on Wed would miss only that day of work and try to go back the next day. Then would have other side done over spring break as origonially planned. Nothing seems to go by the book for me causing a lot of stress as I try not to have these issues interfer with work.
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dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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Old 02-05-2012, 04:48 AM   #2
Ellie F
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Join Date: Feb 2009
Posts: 1,526
Re: surgical drain fell out

Hi
Not had expanders but had a BIG seroma post mastectomy. This was drained quite a few times but kept coming back red and angry and painful. The best advice I was eventually given was by a very experienced surgical nurse who told mew to spend 48 hours putting very cool packs on the area. It constricts the vessels, reduces inflammation and apparently lets the body adjust. It certainly worked and even if it doesn't it is harmless!
Ellie
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Old 02-05-2012, 01:42 PM   #3
chekmark
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Join Date: Nov 2010
Location: Doylestown, ohio
Posts: 334
Re: surgical drain fell out

My skin was very tight, red and very warm to touch. (drains were out). I was told to keep moisturizing it and it really helped. I wasn't doing that in the beginning cuz I just did not like touching it. (gross its so hard) but it really helped. I would try to keep my arm elevated at night for drainage and move my fingers around and never had any problems. Just a few suggestions. Hope it helps. Man girl you have had such a hard time with this reconstruction. I read an article on Suzanne Somers over the weekend and she did stem cell reconstruction. It looked amazing. They liposuctioned fat from her stomach and injected into her breast and made a new one. She did not have a mastectomy but she said that she lost 70% of her breast from the lumpectomy. It is still in the trial phase but it sounds great to me and alot less painful. I think the concerns are cancer cells in your own stem cell. Keep us posted. I am still getting the fills and cannot wait for the exchange. I looks like about 2 more months for me. Will be praying for you. Good luck. Darlene
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DX Sept 30 2010 at the age of 49. Oh crap! 1.5 cm idc, stage 1 grade 3 er/pr+, her2+ no lymph nodes, mastectomy Oct/10. Started 6 rounds of TCH Dec/10 and will continue herceptin until Nov /11 and just started femara.
Stray kitten found my lump while I was playing with it. It is now my pet and my dog is not real happy about that.
Mammo good
last herceptin 11/21/11 YAY
reconstruction 12/09/11
Chapter closed 12/10/11, hopefully, fingers crossed
Bone scan, chest xray, clear
04/27/12 Expander removed, implant put in, ahh sigh of relief, much more comfortable
Sept 30, 2014, 4 years NED
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Old 02-05-2012, 02:39 PM   #4
CoolBreeze
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Join Date: Dec 2009
Posts: 562
Re: surgical drain fell out

It's funny when you said nothing seems to go right for you, because my doctor said the same about me. He called me, "Hard Luck Hannah." And, I hadn't thought of myself that way. I did get mets five months after herceptin ended, but I felt lucky because we had caught it early and I was able to have liver resection surgery. I did get a horrible c-diff infection which put me in ICU and made me critically ill for several weeks, but I felt lucky because I didn't lose my colon and I survived.

Until he said that, I hadn't realized I was a hard luck Hannah! LOL. Here's hoping your surgery goes well and you get a nice result.

I hear you on the work thing though - I was very unhappy that I was not able to go back to work after my liver surgery on the timeline I had set. I am going to try to go back half-time this month if HR will let me. I am not able to function in the morning for about 2 hours but then it might be nice to think about something besides myself.

Good luck!
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http://butdoctorihatepink.com

08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative

10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.

5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.

I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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Old 02-07-2012, 08:09 AM   #5
snolan
Senior Member
 
Join Date: May 2011
Location: El Paso ,Tx
Posts: 436
Re: surgical drain fell out

Thanks for the support, it's been one week since the drain fell out, still swollen but hasn't turned red or warm. I have been icing it when I get a chance. The Dr. wanted to take it out tomorrow but since it is not turning red I think I will wait to see if it can heal on its own. If it turns red then we can take it out when it does. But hopeful it heals on its own. This is the longest I have gone with fluid and it not turning red and hot.
__________________
dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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