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08-20-2006, 05:39 PM
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#1
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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madubois63 - home from hospital
Hi everyone...I am home. Got out early today! I slept a good part of the day away. My counts are steadily dropping, and I have to go several times a week to the oncology clinic for blood tests and possible transfusions. They sent me home with tons of medications, and I have to watch for fevers...that will send me right back in the hospital - so please don't sneeze my way. So now I recoup from this and wait for the next step to come...transplant. It was all so over whelming in the beginning, but I am taking it one step at a time and it doesn't seem as big as it really is. I look forward to the day when a check up is just a check up and they come six and twelve months apart (not every freaking week...). If I don't answer your mail for a few days, it's not because I don't love you, it's cause my stomach is fighting my every being....
Maryann
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08-20-2006, 05:57 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Good for you!
Glad to hear you got sprung. I know that being at home will lift your spirits and I hope that you successfully avoid any germ-mongers and stay out of the hospital. Sending healthy vibes and prayers your way, as always!
Take care
Chris
p.s. OK, although I'm sending healthy vibes I do have a cold, so don't get too close to your monitor!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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08-20-2006, 07:01 PM
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#3
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Maryann
I am truly blessed in meeting you on this board and I admire your incredible strength and upbeat attitude after all you have gone through....stay healthy, rest and keep up your battle....the field goal is in site and I know you'll kick a field goal on this one!!!!
Thinking of you and hope each day brings you renewed strength and health.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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08-21-2006, 01:49 PM
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#4
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Senior Member
Join Date: Mar 2006
Location: Northern Va
Posts: 84
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Maryann,
I am glad to read that you are home. Keep up the fight.
God Bless you!
__________________
Cheryl
Stage II, Grade III, ER+/PR-, Her2 3.0 amplified, N 0/5, dx 9/05, 39 yrs
Right Mastectomy, immediate tram flap reconstruction
4 AC, 4 Taxotere finished 3/15/06
Currently on Herceptin and Tamoxifen
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08-21-2006, 02:04 PM
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#5
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Glad you're home
Maryann I always read your posts and updates and am always amazed at how cheerful and upbeat you are despite everything you're going through.Glad you're home so rest up and stay away from germs!
Hugs
Tricia
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08-21-2006, 03:19 PM
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#6
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Senior Member
Join Date: Jul 2006
Location: Pasadena, CA
Posts: 32
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I am glad you are home!
It is so good to hear your positive attitude. I am sending prayers your way!
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08-21-2006, 08:11 PM
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#7
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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So glad things are moving right along for you. Sounds like you will be ready for the Holidays! Your still in my prayers. Sending you a healing hug, Sandy
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08-21-2006, 10:02 PM
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#8
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Okay Girl - Your HOME where you belong!
I will say a special green one for you each and everyday.....
You are such a WINNER!
Love You!
Jean
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08-22-2006, 04:28 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Good for you!
Hang tough Mary Anne! You continue to amaze and encourage me.
________
How to roll a joint
Last edited by sassy; 08-22-2011 at 08:53 AM..
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08-22-2006, 04:58 AM
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#10
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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One step at a time.....
but you will be running real soon MaryAnn
You WILL get through this bad time and look back at it one day as a far away memory.
Hang in there girl and stay strong.
My thoughts and prayers are with you always.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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08-22-2006, 05:04 AM
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#11
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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MaryAnn,
Your upbeat and positive attitude continue to amaze me. I'm so glad that things are going so well for you. Avoid germs at all cost - wear a surgical mask. Soon you will have your transplant and all this will be just a faint memory. My thoughts and prayers are with you.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-22-2006, 07:10 AM
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#12
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Senior Member
Join Date: Nov 2005
Posts: 943
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You certainly are in my prayers. Keep up the fantastic strenght and spirit that you have.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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08-22-2006, 07:40 AM
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#13
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Dear Maryann,
What an amazing spirit you have! Your positive attitude and inner strength will pull you through this new ordeal while you inspire us all. I feel like such a wimp for ever complaining!
I don't have a cold so I'm hugging my monitor! big hug and love coming your way.
sarah
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08-22-2006, 01:02 PM
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#14
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Dear Maryann, You are truly an inspiration! I always look for your posts and am uplifted by them. Thank you for taking time for sharing inspite of all you are going through. We are all thinking of you and sending love and prayers your way! Hugs, Tricia
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08-22-2006, 01:25 PM
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#15
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I am fairly new to this site and what a blessing it has become to me. I am finished with my chemo and have 3 more herceptin to go. I know that the thought of a recurrence is something we all have to learn to live with and that is so hard to do some days.
MaryAnn, since coming to this site I have admired your upbeat, courageous spirit. God is using you to encourage and bring comfort to others, that is so obvious.
As you go through your own journey may God hold you close and may we bring you some of the comfort and encouragement you bring to us.
Consider yourself hugged.........
marejo from Wisconsin
dx June 2005
Stage 2
1 microscopic cell in first sent. node
er/pr neg. Her2 - pos. grade 3 tumor
started herceptin when taxol began Oct. 2005
October 11, 2006 - LAST HERCEPTIN TREATMENT - YAHOO
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08-22-2006, 02:51 PM
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#16
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Maryanne, I haven't been part of this forum too long, just since the spring, but I am here long enough to know the courage, strength and positive attitude you have which is such an inspiration to so many of us. You have been such a good role model to so many of us who have much less to deal with. I am happy you have some time at home and hope your counts stay up there. With your great attitude, fortitude and postive thinking, I know you will make it through this transplant. You have a beautiful spirit that I hope to be able to emulate throughout my ordeal. Praying you stay healthy and avoid any infections until transplant day. Keeping you in my prayers.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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