HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 10-05-2006, 08:18 AM   #1
al from Canada
Senior Member
 
al from Canada's Avatar
 
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
Well said Tom...........
__________________
Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
al from Canada is offline   Reply With Quote
Old 10-05-2006, 10:41 AM   #2
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Talking Rise above

Dear Rosie -
I love that name - there is a very sweet cat in my family by that name. She is mostly white - so I don't know why that name ...

When we are tired and beaten down by this disease it IS hard to endure such slaps and ignorant treatment as your relative has forced on you.

Tom's idea of the message is great - but you may live a long time with all the drugs we have now. If you have been silently enduring, then it may be time to mention something if you and/or your kids are ill-treated by this person again. (I would not offer to do her any more favors, either, if it adds to your stress over this situation.)
But, something along the lines of the "You are not being kind doing this, but I see that and forgive you" that has been suggested.

I agree with Sherry not to mention your funeral, this seems to be what she wants to hear. Just try to ignore her as best you can since it is a group setting. If she is used to getting attention, ignoring her WILL get her attention.

Try not to stress over this gathering - don't let one selfish person ruin your day and the days leading up to it.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Old 10-05-2006, 10:59 AM   #3
rosie
Senior Member
 
Join Date: May 2006
Posts: 26
Red face

All GREAT advice. Thank you everyone. After a sleepless night I came to pretty much the same conclusion. I can only tell her how her actions made me feel and I don't have to be a jerk and do it in a mean way to feel better. I can simply state fact and how it made me feel. And I think you are all right, not to mention the funeral. My husband will have to deal with that.

But at least I can gracefully say what's on my mind and then move on so that's what I will try to do. GULP. I will keep you posted if I can muster up the courage.

Thanks for listening and really for great, sound advice.
You guys are so wonderful and I am blessed to be a part of this wonderful list.

Rosie
rosie is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 07:22 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter