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Old 05-11-2016, 09:30 AM   #21
agness
Senior Member
 
Join Date: Aug 2014
Location: Seattle, WA
Posts: 285
Re: Law suit due to Taxotere permanent hair loss/balding

y eyelashes are thinner and shorter since doing TCHP two years ago. My eyebrows are also diminished, they are still there but fall out sooner in batches at times and the hairs don't grow as long any longer.

I am not on any anti-hormonals and I did get my menses back after treatment so we can't place blame on my hormones.
__________________
  • Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall.
  • Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy.
  • 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED.
  • 10/27/15 atypical uptake in right cerebellum - inflammation?
  • 12/1/15 Leptomeningeal dx. Starting IT Herceptin.
  • 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly
  • 3/2016 - stable scan
  • 5/2016 stable scan
  • 7/2016 pseudoprogression?
  • 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT
  • 11/2016 Cyberknife to temporal lobe, HBOT just prior
  • 12/2016 - lesions starting to show shrinkage
  • 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone.
  • Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing.
  • Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.
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Old 05-28-2016, 12:56 PM   #22
v-ness
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Join Date: Nov 2009
Location: western ma
Posts: 280
Re: Law suit due to Taxotere permanent hair loss/balding

thank you, lauriesh, for pointing out the facts people should know about. it's one thing to feel grateful that a chemo drug saves your life, but that does not mean a company should not be taken to task for failure to be transparent about an EXTREMELY serious side effect. that is what is at issue - not telling people they might be permanently bald. also, it's not like Taxotere was our only option. it is a synthetic version of Taxol, which apparently does not cause permanent hair loss. so, had we all be given the opportunity to take taxotere versus taxol into full consideration with all the information, we may have made different choices. i made choices in my chemo, opting for TCH instead of taxol and adriamycin (because adriamycin, the red devil, is heart toxic). who needs heart toxic when herceptin is already weighing on our hearts? i may well have said give me taxol instead of taxotere. in reality, my reason for opting out of taxol was because it is made from a rare Yew tree and choosing a synthetic drug wasn't endangering anything. or so i thought. i have had less hair on the crown of my head, but since i have used a natural shampoo and conditioner and oil by Monat, i have seen it grow back thicker. i doubt it will ever be what it once was. but what has only scantily grown back are my eyebrows and this is distressing to me. i can't tell you how many eyebrow pencils i have tried in my quest to find one that will stay on despite sweat, etc. otherwise, you would swear i was still on chemo if i didn't "have my eyebrows on", they are that thin. i am considering tattooed eyebrows, in fact, but am nervous because i have old scar tissue from a car accident in 1989. i am not a pain wuss, but still.... i don't even know if loss of eyebrows would even count toward a suit, and i am not fond of ambulance chasers either, but i would have made a different choice. i would not have gambled my hair. would any of us? not when there are other options just as if not more potent, like taxol. i asked them about eye brows and a lawyer's office has tried to call me, but i am still thinking it over. sure, it seems minor to whine about eye brows when you weigh it against your life, but the issue is why weren't we told in the first place?
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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