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Old 11-01-2007, 11:35 AM   #9
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Wink When Friends Ask...

Friends ask astounded, YOU'RE STILL ON THAT CHEMO? When will you be done? I pause, to get their full attention, and then say calmly and with a smile -- FOREVER.... FOREVER??!!, they respond, looking away with utter disbelief.

WHAT'S THE NAME OF THIS CHEMO?

So I give them my (poor and medically lacking) understanding of what I am doing, and it seems to make them nod with comprehension. They honestly want to *get it*. They are truly interested.

So I say -- It is not actually *chemotherapy* but is rather A MONOCLONAL ANTIBODY. I explain that it is like a SMART BOMB, specifically targeting my defective HER2 gene -- and stopping it from overproducing a certain protein that grows and divides out of control -- which is what cancer is.

Then I add, to my husband's consternation, that I see it as my insulin. Herceptin keeps my malfunctioning condition in check. (People understand the need to remain on insulin as a diabetic -- forever...)

I add that it is given by infusion, in the chemo room. It has far less side effects than chemo (leaving you with your hair and no pain or nausea), BUT it is still a toxic agent that could effect your heart. So it requires constant monitoring of the heart (w/ECHO cardiograms).

Friends then say, THANK YOU FOR THAT. YOU'RE DOING GREAT! YOU LOOK GREAT! (I know they are envisioning an enfeebled, pale chemo patient and in comparison I do look great...)

Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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