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Old 12-31-2007, 08:11 AM   #21
tousled1
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Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Kat,

My history is in my signature. Since I started Herceptin my oncologist and I have used the HER2 serum test to monitor my progress. Tumor markers have not been reliable for me. When I was first diagnosed tumor marker as 15.3 and it is currently 15.1 and I'm now Stage IV. I have CT scans of the brain and chest every 12 weeks to check progress. Hope this helps. I was only NED for 3 months before I developed METS.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-31-2007, 09:31 AM   #22
CPA
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Join Date: May 2006
Posts: 93
2 yrs NED (everything below with signature)
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Husband to Jill
Diagnosed 10/05, age 39
R Mast 11/05
Stage II N0
Her2+ er/pr+
Revision Mast due to positive margins 12/05
TCH Chemo started 1/06
Finished TC 4/06
Tamoxifen
Finished H 12/29/06
Currently NED
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Old 01-01-2008, 03:38 PM   #23
Paris
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Join Date: Jan 2007
Posts: 73
I am still on herceptin so can't weigh in but do have a question. Are there any stats that show recurrance rates of patients that were in the Herceptin clinical trials? Long term, i.e. ten years out from completing treatment, do we know how we are going to be?

Jamie
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Diagnosed 11/06 IDC left breast Stage 1, High Grade w/extensive High Grade DCIS. Right breast extensive hyperplasia w/calcifications.
ER-/PR- HER2+++
Bi-lateral masectomy 12/15/06 w/expanders
SNB Node Negative
Chemo Taxotere, Cytoxan 2/07-4/07
Herceptin Started 5/07
Exchange surgery 6/15/07
Herceptin stopped after 12 rounds due to herceptin induced cardiomyopathy
On heart meds 'til?
Age 40 at diagnosis
Cancer may have been a defining moment but it does not define me!
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Old 01-02-2008, 12:07 AM   #24
AlaskaAngel
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Join Date: Sep 2005
Location: Alaska
Posts: 2,018
NED 5 years plus

Stage I, 1.6 cm IDC with some DCIS
CAF x 6
Radiation
No Herceptin
ER+, PR+, HER2+++

Over 5 years out. See PCP for annual physical exam and breast check. Get standard mammo annually. Last onc visit at 4 years out, no more planned visits with onc. Saw surgeon at 4 years out. No more planned visits with surgeon.

AlaskaAngel
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Old 01-02-2008, 12:38 AM   #25
jones7676
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Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
Diagnosed Stage IIB Oct 03 Chemo until Early Spring 04. Diagnosed Stage IV Lung and Bone Mets Dec. 05. (So, over 2 years from surgery, but not quite 2 years after chemo). Went about 6 months without treatment after 2nd chemo, and have been undergoing some type of treatment ever since.
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