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Old 02-16-2016, 07:36 PM   #1
Dakini52
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Join Date: Jan 2010
Location: Edmonds, WA
Posts: 202
Re: Calling all stage iv sisters

Jackie, I'm thinking of you and hoping you have a positive outcome from all of this. I hope you will keep us all posted on your status. We care about you and want you to have the very best.
Debbie
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Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.

Debbie K
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Old 02-24-2016, 04:48 PM   #2
Jackie07
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Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
Re: Calling all stage iv sisters

Thanks, Debbie.

Have some good news to share...

Didn't receive anything from the hospital for about 10 days (was told it would take five days to get the result and there was a President's Day long weekend in between), so I sent a message to my breast cancer oncologist. (The biopsy was ordered by the GI surgeon after my oncologist had sent me to her for a consult following the ultrasound and CT ordered by the nurse practitioner at the branch clinic near FIL's house). Below is the reply from the oncology nurse (I did make an appointment with the GI surgeon and will see her on the 29th. "An appendectomy and biopsy of the swollen lymph nodes near by will give us a definitive answer to the appendix problem," according to her during our last visit. Has anyone ever hoped/preferred to be diagnosed with an appendicitis?

Received:

2/23/2016 11:52 AM CST
Hi , Dear
Dr S. said to tell you the biopsy is OK, there is no cancer in your liver. No need for chemo.
It would be a good idea to call or send a message to your surgeon and see about the appendix.
Let me know if you have any questions. Thank you, C.

----- Message -----
From:
Sent: 2/22/2016 11:29 PM CST
To: S., MD
Subject: Test Results Question

Hi,

Have you heard anything from my liver biopsy that was done on the 12th? I am pretty sure I have appendicitis and breast cancer metastasis to the liver. Wondered if I needed to take the appendix off before chemo or wait till after the treatment.

Thanks for taking your time to read this. See you on March 4th.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
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H w x 4 MUGA 51 D, J 49 M
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Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
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Last edited by Jackie07; 02-24-2016 at 05:06 PM..
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