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11-13-2007, 08:49 AM
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#1
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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As for me...(madubois63)
I saw the thoracic (jerk) surgeon yesterday. The CAT showed the nodules and agrees that they look like bc. So I am having my lung drained and sealed with talc (again) on December 5. The surgeon will also do a biopsy then. I'll be in the hospital for a few days - ugh! I have to get all kinds of clearance for the procedure, so I've been making phone calls. Now I have to go to 50 more appointments that I don't need... I will probably change hormonal's next week. I will be taking fasoladex. It's a shot given once a month. Thanks for all the mail and well wishes. I LOVE you guys!!
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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11-13-2007, 08:56 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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Oh Maryann
Not the news you want to hear, but you will get through it. I'm thinking of you and sending all good wishes.
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11-13-2007, 09:25 AM
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#3
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Senior Member
Join Date: Apr 2006
Location: FLORIDA
Posts: 148
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I'VE BEEN TAKING THE FASLODEX SHOT SINCE LAST MARCH. JUST WANTED TO LET YOU KNOW, I HAVEN'T HAD ANY SIDE EFFECTS. I HAVE STARTED FEELING BETTER SINCE TAKING IT. HANG IN THERE, I WISH YOU WELL.
__________________
SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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11-13-2007, 09:36 AM
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#4
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Ah, man!! I am sorry that this is happening, but I know that you will kick these mets to the curb.
Hugs,
Lexi
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11-13-2007, 09:52 AM
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#5
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Senior Member
Join Date: Oct 2007
Posts: 47
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I'm so sorry that you have to go through even more procedures as well as all the turmoil that preceds it. Just know that so many of us are here to love and support you - and encourage you through to renewed health!
Patrice
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11-13-2007, 10:16 AM
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#6
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Hi Madame Dubois
Sorry you have to take another run at it. I wish you all the best - lots
of strength, courage, spunk and whatever else you will need to get through this one........I know you will........ Keep the faith....
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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11-13-2007, 10:34 AM
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#7
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Not the greatest news, but you are one tough gal and you will get through this. Sending you lots of prayers and hugs!
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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11-13-2007, 11:00 AM
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#8
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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No, not the news we were all praying for but I know you'll come through just fine. You are always in my thoughts and I'm so sorry you have to face another round. Keeping you in my prayers.
Love
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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11-13-2007, 11:28 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Hope your procedure goes well ... will be thinking about you.
Maria
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11-13-2007, 12:42 PM
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#10
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hey Maryann,
You didn't need another chapter in your already fascinating book! This will be another victory chapter! But I just hate that you can't be thinking about other fun stuff and adventures. I'm believing with ya for another victory! Lots of love, ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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11-13-2007, 01:34 PM
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#11
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Mary Anne, I am so sorry to hear you have yet another hurdle to jump. I sure wish you didn't have to go through this as you have had *more* then your share. I am going to pray that the biospy shows differently!!! If anyone can get through this its you...but it STINKS that you have to deal with this. I will be thinking of you and keeping you in my thoughts and prayers.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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11-13-2007, 04:29 PM
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#12
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Dear Sweet Maryann,
I'm sorry that your "journey" has taken this route for you. I am praying that all you will undergo, will bring about better health for you.
Hugs and love I send,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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11-13-2007, 04:53 PM
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#13
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Sorry that you did not get the news you wanted, but you are one tough cookie and I know you will get through this. I will continue to keep you in my thoughts and prayers. Best wishes.
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11-13-2007, 06:48 PM
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#14
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Drat and Dbl Drat. You need a BIG HUG, and I'm sending you one right now!
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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11-13-2007, 07:50 PM
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#15
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Mary Ann,
I know this is not the news your were hoping for. I will keep you in my prayers that everything goes well.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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11-13-2007, 08:56 PM
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#16
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Senior Member
Join Date: Aug 2006
Location: So California
Posts: 223
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Love & Prayers
Mary Ann,
You are my hero. Everyone on this site loves you so much and wishes you the best. I send you my love and am praying now that God take care of you once again. You are one awesome woman!
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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11-13-2007, 10:04 PM
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#17
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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You know we love you too. Hang in there, Amazon lady.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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11-14-2007, 09:42 AM
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#18
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Senior Member
Join Date: Sep 2005
Posts: 556
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Maryann,
You can beat this once again. Hang in tight. Sending best wishes and lot of energy.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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11-14-2007, 11:13 AM
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#19
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Maryann,
Please take this prayer with you into surgery on Dec. 5th.
I will say it on Dec. 5th for you also.
The light of God surrounds me.
The love of God enfolds me.
The power of God protects me.
The presence of God watches over me.
Whatever I am, God is and all is well.
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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11-14-2007, 12:18 PM
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#20
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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sorry you have to go through all of this. you're so courageous. Hope you have more angels and less jerks in your life.
we love you too
hugs and love
sarah
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