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11-11-2007, 05:37 PM
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#1
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Senior Member
Join Date: Nov 2006
Location: Bedford, Virginia
Posts: 134
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Port Removal after Treatment - Discomfort??
I have my last Herceptin treatment this Friday. I am going to meet with my Onc regarding scheduling the removal of the little gizmo. Do I need to plan on being out of work for a couple of days??? I work retail and this is a crazy time of year for me. I am so anxious to have it removed, but I am wondering if I should be patient and have it removed after the first of the year.
Louise
__________________
- Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
- Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
- AC/Cytoxin combo - 4 treatments (dose dense);
- Taxol/Herceptin combo- 12 weekly treatments;
- Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
- BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
- MRI, 08/02/07 - NED
- 1 year Anniversary - 09/07; completed Herceptin 11/07.
- Mammo 02/14/08 - NED; MRI - 08/2008 - NED
- 2 year Anniversary - 09/08
- Mammo 02/09 - NED; MRI - 08/09 - NED
- 3rd year Anniversary - 09/09
- 5th Annivery - 09/2011 - NED
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11-11-2007, 05:45 PM
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#2
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Senior Member
Join Date: Oct 2005
Posts: 215
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Port removal
I just had my port removed on Monday. In office procedure, no pain, no down time. Was just told not to lie flat on my back for sox hours. All healed now and you can hardly see the scar. . Jeanette
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11-11-2007, 05:48 PM
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#3
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Senior Member
Join Date: Nov 2006
Location: Bedford, Virginia
Posts: 134
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Jeanette, thank you. No pain and no down time is music to my ears. I have a double port, and I am sooo ready to lose it.
__________________
- Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
- Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
- AC/Cytoxin combo - 4 treatments (dose dense);
- Taxol/Herceptin combo- 12 weekly treatments;
- Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
- BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
- MRI, 08/02/07 - NED
- 1 year Anniversary - 09/07; completed Herceptin 11/07.
- Mammo 02/14/08 - NED; MRI - 08/2008 - NED
- 2 year Anniversary - 09/08
- Mammo 02/09 - NED; MRI - 08/09 - NED
- 3rd year Anniversary - 09/09
- 5th Annivery - 09/2011 - NED
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11-11-2007, 07:29 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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I'm sure this is NOT normal but my port removal was a nightmare. I had mine in my under arm. (Facing outwards on my upper arm.) The port itself worked great the entire time I had it.
But the radiologist that removed my port seemed like he was in a hurry. He removed it and put the sutures in and told me I did NOT need to come back because he used dissolvable stitches. Two techs that were there finished up and covered it with gauze & this clear adhesive stuff that looked like saran wrap. The only thing they said was NOT to get it wet.
I left there and it was no more the 20 minutes and it was bleeding pretty bad. I was told to go to the ER asap where I spent 4 1/2 hours. I was told NO showers or nothing for over a week and to keep it clean and dry. Mine was a little painful and it did get in the way of my normal activities. In fact it ruined a good two wks of my life so I WISHED I had waited to have it removed. Plus my sutures NEVER did dissolve as promised. They were in my arm for almost 2 months till I got my surgeon to remove them. Again, I am sure this is NOT the norm as I've had many women say they had no problems. I believe you will find most women's experience with port removal went as smoothly as Jeanette's. I'm the only one I know of as always that had a problem. I have a good 4 inch red scar across my arm and its been 6 months since my port was removed. I seriously have never heard of anyone having a problem but me...I really think you will be fine.  (It just so happens that Murphy is my best friend)
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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11-11-2007, 07:49 PM
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#5
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Louise
Lucky You getting it out, and I am getting one in 2 weeks, I meet with the surgeon the 20th...my veins have gone south all of a sudden!
I hope getting it out is simple for you and you have no problems....
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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11-11-2007, 09:04 PM
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#6
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Senior Member
Join Date: Jun 2006
Location: Grand Terrace, Southern California
Posts: 114
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I had my remove back in 97 at the facility were I had my chemo treatment. The numbe the area, pull the port out, and put pressure on that area. You will be back doing the same things like before. Wish you will.
Rendi
__________________
04/97- breast bx. diagnosis breast cancer.
05/97- radical mastectomy; 5cm tumor & 11 lymph nodes.
10/97- City of Hope, high dose chemotherapy.
11/97- 36 radiation therapy.
01/98- NED; tamoxifen.
02/02- breast reconstruction.
08/04- recurrence; mets to rt lung; thoracentesis; femara.
09/04- thoracentesis; ER/PR +, Her2+++.
10/04- total abdominal hysterectomy.
02/06- mets to 9th rib; monthly zometa; arimidex.
06/06- medi port insert; weekly herceptin.
10/06- 3 weeks herceptin treatment.
02/07- mets to liver; arimidex
11/07-liver clear
02/08-chemo taxol/herceptin weekly treatment
12/08-taxol not working
01/09-navelbine/herceptin weelky
03/09-navelbine not working
04/09-xeloda/tykerb
09/09-30 radation to neck; xeloda/tykerb not working
11/09-Gemzar/herceptin weekly
04/10-tykerb/herceptin weekly
06/10-cancer spread to left lung;stop treatment; tap
07/10-right lung collasps; TDM1
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11-11-2007, 09:09 PM
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#7
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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I had absolutely no discomfort when I had my port removed. The area was numbed and the port removed in the doctor's office. Unfortunately I developed mets and had to have another one put in.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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11-12-2007, 07:11 AM
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#8
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Senior Member
Join Date: Sep 2007
Location: Tampa, FL
Posts: 43
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I only dream of getting mine out, but until they come up with a pill for Zometa, looks like I will have one for the rest of my life.
Good luck, and congradulations!
Verna
__________________
stage IV, diagnosed Nov.11,2005
mets to spine,hips,pelvic,femur
4 a/c
mastectomy Feb.14,2006
4 taxol
mets to liver
5 weeks radiation
Herceptin/Zometa
reconstruction Feb.14,2007 (DEIP)
Tykerb/Xeloda
TDM1 study
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11-12-2007, 07:58 AM
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#9
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Senior Member
Join Date: Jan 2007
Posts: 144
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Sore for 1-2 days
I had my port out on Nov. 7 as on out-patient and was very sore for 2 days after the procedure. It has healed now and the scar is much bigger than I thought it would be.
If you have to do a lot of lifting, I would wait.
Just my opinion.
Good luck,
Emelie
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