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Old 12-26-2012, 10:42 AM   #1
KsGal
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Join Date: Dec 2011
Posts: 585
Starting WBR for brain metz

Well, I had asked my oncologist about getting an MRI of my brain just to check three months ago, and he said he basically would wait for symptoms to do any scans other than my regular CT abdomen and pelvis.
Soooo...on Saturday I got the worst headache I have ever felt in my life, and ended up in the ER. By the time I got processed through the ER and transported to a different hospital, etc, etc, they had basically decided to put me on comfort care and let me go. Seems from the MRI I have five brain lesions, one that is putting pressure on my brain stem. Every time the pressure flares up, my heart rate drops down in 20s and 30s.
They called in a radiation oncologist, who put me on some massive steroids and morphine, and they seem to have it somewhat under control. I just had my second whole brain radiation, and they are hoping that this will bring it down and whatever is left they can cyberknife...
I felt fine right before this, so it was a pretty big shock to the system to wake up in the neurological critical care unit and find out I was supposed to have passed on the night before according to the doctors.
Im doing well enough today they have let me return to my home. Once the steroids kicked in pretty well, the pain is basically gone and Im not having the symptoms caused by the swelling.
I know many of you have had WBR and it worked well, so I am optimistic, but still really scared that everything got so bad so fast.
I just wanted to keep everyone updated, and ask for any prayers you might be able to send my way. Lots of love to you all, and prayers and positive energy.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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