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Old 12-10-2006, 01:29 PM   #1
Becky
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I'm bringing this one back to the top
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 12-11-2006, 03:33 PM   #2
gin-tx
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Diagnosis and present status

Dear Becky,

I couldn't find your message but finally located it. I was originally diagnosed in 1995 (dec) with breast cancer on the left breast, had a lumpectamy and 36 radiation treatments. Was fine for 1 yrs, kept up with all necessary tests, mammograms, etc. In Feb of 2006 began noticing something that was not right, went to gyn and he sent me to a breast surgeon. I had biopsy April 27 of this yr, he thought everything looked okay, told my family he thought everything was fine. On Mon he called and told me it was malignant. The next day I saw him again and he needed to do wider margins but first had to have some other tests. Had sentinel node done around May 10 and had wider margins and lymph nodes done on May 12, first lymph node was malignant but others were all okay as well as other tissue. Then began rounds of bone scan, something showed up, had MRI, diag with stage IV metastatic cancer, onc sent me to radiation oncologist, had 18 treatments on spine, lungs, esophygus affected also and difficulty eating, swallowing, etc. Not fun. Started chemo after port put in during all this. Am still doing Herceptin and Aridia every 3 weeks, having some more back pain but can't do surgery because of chemo, it prevents healing and causes infection. Don't know how much longer I'll be doing the treatments, maybe for a long time. Hope this answers your question.

ginkott1@aol.com
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Old 12-11-2006, 07:47 PM   #3
kari
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Hi Becky,
Theses are my stats:
Lumpectomy-Dec9/05;
Dx Dec 16/05-Stage IIB IDC, 2.2cm (no clear margins), grade 3,ER+/PR+, Her2+++;
Mastectomy&SNB-Jan 11/06 (2 nodes +);
Axillary Nodes-Feb6/06 (all 17 neg);
4 rounds AC-Mar6/06;
4 roundsTaxol-June20/06;
25 Rads-Sept26-Oct31/06;
Tamoxifen-Nov5/06(for 2-5 yr);
Herceptin-Nov16/06(for 1 yr, every three weeks);
Surviving!

Best wishes to all that you may enjoy the goodness of God's blessings of health, peace and happiness during the holiday season and in 2007!
Kari

"The good Lord gave us mountains, so we could learn how to climb!"
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Old 12-25-2006, 03:45 PM   #4
gin-tx
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Diagnosis and Status

Dear Kari,

Sorry it's taken me so long to get back with your request for info, between working part time and treatment there isn't a lot of time to spare. I hope this finds you doing well, you'll have to let me know your status also. I was originally diag with bc in Dec 1995. Nothing showed up until April 2006, had biopsy and dr thought it looked good. He called me 3 days later and said it was malignant but did not know how severe it was, did wider margins, one lymp gland positive, all other tissue was fine. During course of various tests something discovered on my spine in body scan, had MRI, it was malignant tumor pressing on spine, onc sent me to radiaiton oncologist who said treatment had to begin immediately, also had port installed, 18 radiation treatments with side effects to esyphogus, digestion, swallowing, etc. Still have a few of those, am taking Herceptin and Aridia every 3 weeks, holding my own, nothing new has showed up. I have to get CT end of Jan. See if lungs, liver and spine are still same status. Some days I feel real good, others not so hot, try to take each day as it comes.

Keep me informed of your status and where you are with treatment.

hugs,
ginkott1@aol.com
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Old 12-27-2006, 04:31 PM   #5
Susan McQ
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Smile

This is my info.

dx 2/6/06 with IDC stage 2 rt breast @ 39. 4 AC's completed in April 2006. Started weekly Taxol/Herceptin May '06 completed August '06. Complete response to chemotherapy.
Lumpectomy 8/15/06 NED.
33 Rads completed Oct '06
Weekly Herceptin to be completed May '06 (1 year total)

Last edited by Susan McQ; 12-27-2006 at 04:32 PM.. Reason: added stage
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Old 01-01-2007, 07:27 PM   #6
mamacze
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Hi Becky,
Are you compiling information?
My stats:
2001; Stage 0 Rads and tamoxifen
April 2004 lumpectomy, er/pr neg, Her 2 neu Plus 3 scans, stage 4 with extensive mets to the lungs, Navelbine and Herceptin
October 2004 to date: NED
Love Kim from CT
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Old 01-01-2007, 07:33 PM   #7
Adriana Mangus
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Question Questions

Dear Kim: In reading your response to Becky you mentioned Navelbine and Herceptin and being NED since Oct'04. How long were you on that combination? What is on 1 side or both lungs? Are you now on Herceptin-just Herceptin?
I will appreciate your response. Thank you Kim.
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 01-01-2007, 07:43 PM   #8
Adriana Mangus
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Location: California
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Wink Dx,Stage, current treatment

Diagnosed Nov' 94, Age 38. Rt breast, less than 2 cm/tumor.Clear Nodes. Lumpectomy.
Asked for removal of both breast, surgeon refused?
Chemo 4 weeks+radiation 3 months, 5 x wk.
Recurrence 2003 July 16 (MY-B-DAY!) to rt lung, coughing for about 3 months,
went to see Personal Phyhsician,X-ray showed mass.
Navelbine + Herceptin, 8 months,
Continue Herceptin-NED until;
Nov.'06 CT chest scan showed tumor growing
Jan'07 will add Xelod to Herceptin (possibly Tykerb when available)

Let me know if you need additional information.

Stage 1 at the time of dx
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane

Last edited by Adriana Mangus; 01-01-2007 at 08:02 PM.. Reason: Adding stage of disease
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Old 01-02-2007, 08:02 PM   #9
SusieQ
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My DX, Treatment and Current Status

My DX, Treatment and Current Status
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Susie Q - North San Diego
Diagnosis at Age 41 on 10/6/06
~3cm Invasive Ductal Carcinoma Left Breast Stage II
~ER+ 45% Moderate ~ PR+ 62% Strong
~HER2/neu +++
~Sentinel Node Biopsy - Negative Four Nodes
~BRAC1/BRAC2 Negative
~Neo-adjuvant Chemo:6 rounds-every Three
Weeks of Taxotere & Carboplatin & Herceptin
Weekly Completed on 2/7/2007
~Lumpectomy (after chemo) 3/12/2007
~Switched to Every 3-week Herceptin 3/21/2007 for nine more months.
~Radiation May through June 2007 (35 rads total)
~Hormone therapy Lupron Injections + Arimidex
~Lymphedema Challenged!
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Old 01-02-2007, 08:22 PM   #10
julierene
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Posts: 327
My stats below. Dec 03 I was 28. I turn 33 in March.
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Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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Old 01-02-2007, 09:42 PM   #11
Lolly
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Posts: 1,756
I was diagnosed at age 45, am now 53. Going into my 8th year of survival, with overall great quality of life!
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 01-02-2007, 09:47 PM   #12
Sherryg683
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My history is below, if this signature thingy works..sherryg
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Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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