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Old 10-20-2006, 04:39 AM   #1
lindaw
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Hi

Had scans on Wednesay and monday. rang Onc to get results. For the first time he said he has not seen them and will discuss next Thursday ( when i have next appointment). Makes me feel there has been spread - have skin mets and now a lymph node but maybe there is more. feeling a bit fatalistic about it all and tired of the dragging out. Sorry.

Linda
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Old 10-20-2006, 09:29 PM   #2
tousled1
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Linda,

It could be that he doesn't have the results back as yet. I went to my onc's office on Thursday to get blood drawn (counts, HER2 serum test and genetics). While I was there I asked for a copy of my PET/CT scan that I had done on Monday and a copy of my echocardiogram that I had done the previous Tuesday. Well, the nurse had to get on the phone. Got the echo results faxed over so I got my copy of that. The place where I had the PET/CT said they didn't have the report finished yet. Makes me wonder what's taking so long as they said my doctor would have the results the next day. I'm worried and trying to keep my mind occupied with other things -- it's not working. Hang in there, I'm sure your results will be ok. Keep us posted.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 10-21-2006, 06:03 AM   #3
Sheila
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Linda
Sending you a big hug...waiting is so hard....hoping your scans are all good reports for you....keep your chin up and focus on the great person you are....I will keep you in my prayers....sometimes this fight overwhelms all of us!
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-21-2006, 09:21 PM   #4
Lolly
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Hi Linda,

I sure know that feeling It's so hard not to get down. Keeping you in my prayers.

<3 Lolly
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Old 10-22-2006, 05:44 AM   #5
lindaw
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Dear kate , Lollly and Sheila

Thanks for your support - am hoping my Onc will have the Tykerb on Thursday but know it won't be so easy and now I wait for scans as well. Thanks for your support - I know you have experienced the wait as well- just feel cheated I guess after the pain of the 5 weeks rads and now it moves again - but we all have experinced this - it really is a trying disease.

love
Lindaw
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