HonCode

Go Back   HER2 Support Group Forums > Profiles In Courage
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 08-16-2005, 06:29 PM   #1
Betsy
Guest
 
Posts: n/a
I have just discovered this website and wanted to share my story. I was diagnosed with stage III ER/PR+, Her-2+ breast cancer at 26. I had a mastectomy followed by 6 months of chemo (Adriamycin, cytoxan and taxol) followed by radiation and then Tamoxifen. About two and a half years later, I started limping and was eventually found to have a metastasis to my spinal cord (not in the bones, but rather the cord itself, so it's comparable to a brain met). I had surgery to remove it then radiation but it grew back about a year later so I had stereotactic radiation to the spinal met. It shrunk to a few millimeters and it is not known if there is any active cancer left (the only way to know is if it grows). About 1 1/2 years after the spinal cord surgery I had metastases to the lungs. I had had shortness of breath and coughing along with rising markers. There never were any nodules in my lungs but rather it was described as a diffuse, interstitial spread. I had Carboplatin, Taxotere and Herceptin (6 times). I now continue to get Herceptin every three weeks and will continue on it indefinitely. The lung mets immediately cleared up and my markers have been normal for most of a year now. My cancer seems to be very responsive to Herceptin which is great but what troubles me is that the Herceptin doesn't cross the blood-brain barrier to reach the spinal cord spot. I am very healthy for my stage IV diagnosis. I work full time as a research nurse on two studies for women with breast cancer (quality of life studies). I swim on a swimteam about 4 days a week and I'm soon to start my PhD in nursing. Also, I just got engaged. Now to fix the spine met...
  Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 01:34 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2018, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter