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08-22-2007, 02:42 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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prayers please...
I have been experience some shortness of breath lately, so called for an appointment with my onc whom I saw on Monday. He decided to schedule CT, bone scan and muga.
Well..I had CT and bone scan today--don't have any indication on CT yet, but I watched my bone scan and there was an area on left ribs that lit up. I have watched my two previous bone scans, and this was definately something different from before. Onc should be calling me in the morning.
Outside of an injury (ie break) whatelse could lite up besides mets? This is in the area where I had the infamous staph infection, but I seriously doubt that previous infection or scar tissue would show up on a bone scan.
Appreciate any info you can share---and certainly appreciate your prayers.
________
LIVE SEX
Last edited by sassy; 08-22-2011 at 09:27 AM..
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08-22-2007, 02:53 PM
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#2
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Sassy,
It could possibly be some scar tissue. Try not to think the worst -- wait until you hear from your doctor. I found that when something bad showed up I got a call the same day as the scan. I'm praying that nothing shows up on any of your tests.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-22-2007, 03:48 PM
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#3
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Sassy
Try not to worry...I know, easier said than done. I also had a Left Mastectomy and 3 years later, my bone scan lit up like the 4th of July on the left side....in the ribcage....it was suspicious of bone mets, but after a rib xray, and evaluation, it was deemed to be a fx rib..that I got sneezing. Scar tissue or any inflammation...even arthritis will show as a hot spot on some bone scans....hopefully you will get good news tomorrow. You are in my prayers
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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08-22-2007, 04:32 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Prayers, certainly.
I agree, try not to worry, the bone scan could be bruised rib or other stuff completely unrelated to cancer. I hope this is the case.
Hang in there, sister.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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08-22-2007, 04:36 PM
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#5
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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You have my prayers my friend. Please let us know how you make out.
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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08-22-2007, 05:08 PM
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#6
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Senior Member
Join Date: Dec 2005
Posts: 274
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Hi Sassy,
Saying a prayer and I am sure you will be fine. Try to get some rest tonight. I know easier said than done and please keep us posted.
All the best.
Sincerely,
Liz J.
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08-22-2007, 05:08 PM
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#7
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Senior Member
Join Date: Dec 2006
Posts: 136
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Sassy -
I work in Radiology---not nuclear medicine but have been around it quite a bit. Infections (even from some time ago) certainly can result in "uptake" on a bone scan. I have seen it many times. It also could have been a kidney you may have seen behind the rib cage which has normal uptake. (forgive me if that sounds elementary because you probably know about bone scans) but I have heard patients (and friends) concerned about seeing the black uptake in areas where it is normal. Areas of old heeled fractures can also show uptake.
However, I certainly know your anxiety. I know I would be as well. Think positive-----it is an area of your old infection! Keep repeating that.
Certainly let us all know when you do.
__________________
Debra
Diag. 11/05 at age 40 triple positive
3.8 cm tumor and 9 mm tumor
Stage IIb/SN positive(no other nodes)Grade 3
Bilat. mastect. 12/05 (Rt.prophylactic) followed with AC/taxol/Herceptin/tamoxifen then switched to arimidex after hysterectomy in 12/06. August 07 switched to Aromasin due to severe jt. pain from Arimidex. Nov. 2011 No more meds and NED!
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08-22-2007, 05:34 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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You have my prayers Sassy.
Hugs,
Lexi
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08-22-2007, 05:39 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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An old infection can certainly light up your scan. SECONDLY, Staph infections can really linger - longer than you think. They can be hard to get rid of and you don't even know they're still there.
I wouldn't worry about this. Also - this is a shortness of breath time of year. The air has been thick, its been a rainy summer with tons and tons of pollen (because of so much rain and not as dry lots of weed flowers and ragweed - we are suffering here)!
Do you feel sick or "sinusy"? Are you really short of breath or does it just feel like a brick is on your neck or upper chest? Can you still do all the activities you do or are you too winded?
I am betting all my money on something else (allergies, asthma - yes, these things can happen for the first time at our age) but not mets.
Let us know.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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08-22-2007, 05:53 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Thanks everyone for all your support, and thanks for the push Kate. Still praying for "nothing".
Jeremiah 29:11-13
________
Park Royal 2 Condo Prathumnak
Last edited by sassy; 08-22-2011 at 09:27 AM..
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08-22-2007, 07:08 PM
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#11
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Sassy,
And "nothing" it will be. You know you are in my thoughts and prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-23-2007, 04:48 AM
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#12
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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I love early risers!
My oncs office just called and Sheila had it right! Two areas on ribs showed as previous fractures! Don't have any idea when that happened. Whole body CT also showed no evidence of mets!
Thanks for all your thoughts and prayers. I will continue to hold us all up in prayer as we travel this journey.
________
COLORADO DISPENSARIES
Last edited by sassy; 08-22-2011 at 09:27 AM..
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08-23-2007, 05:53 AM
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#13
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Great news Sassy! Especially great cuz I put ALL my money on no mets and with 2 of 3 kids in college this year, I can't afford to lose a dime.
Congrats
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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08-23-2007, 06:48 AM
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#14
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Oh yes! The infamous previous rib fracture lights. I had a CT of my rib area too and lit up in a number of places. Boy was I petrified. Scans are a situation where infections, arthritis and fractures are wonderful news. Go figure. Celebrate. I am so glad for you. EnJOY
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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08-23-2007, 07:16 AM
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#15
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Yea, Namesake!!!!
I TOO love early risers ESPECIALLY those with good news  Have an AWESOME day Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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08-23-2007, 07:26 AM
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#16
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Sassy, so glad to hear the great news, what a relief, huh? Keeping you and everyone else here in my prayers.
Hugs
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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08-23-2007, 08:23 AM
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#17
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Sassy,
I have tears of joy in my eyes. I am so happy and relieved for you. I am looking forward to more good news from all our brothers and sisters in our group!
Hugs and Prayers,
Lexi
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08-23-2007, 11:29 AM
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#18
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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Good going Sassy - glad to hear it was all clear. So was my last scan and I was just preparing for the worst here at the 2year mark! whew.... God is good.
__________________
Kim
Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes
BRCA 2 positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara
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08-23-2007, 12:21 PM
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#19
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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YIPPEE for great news.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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08-23-2007, 12:31 PM
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#20
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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What wonderful news!!!!!!!!!!!!! Relax and enjoy....
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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