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11-07-2007, 06:00 AM
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#21
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Mary Anne,
I'm so sorry to hear that you are having problems. As for the doctor -- yes he sounds like a complete jerk - but as long as he's a great surgeon I'm sure you can deal with his insensitivty. I'm praying that the biopsy shows nothing.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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11-07-2007, 06:19 AM
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#22
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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My surgeon sounds like your surgeon's twin. If yours is as "bad" as mine, then you are in wonderful hands ! (or sall I say clutches).
When you are done with your procedures, we will all be here waiting for you.
Hugs,
maria
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11-07-2007, 07:11 AM
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#23
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Hello Maryann,
So you're surgeon's a talented jerk! The important thing is that he's a good surgeon - you're a trouper and knowledgeable and probably know more about your disease than he does. Think Picasso - wonderful artist, horrible human being!
Hope the biopsy shows no cancer. This is probably one of the simpler things that you've been through. You're a wonderful, courageous, inspiring person and you have a great book inside of you.
all the best,
love and hugs
sarah
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11-07-2007, 07:29 AM
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#24
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Maryann, thanks for the update, you've been on my mind constantly. I'm praying for the very best results for you. With everyone here storming heaven with prayers for you, you will do fine. Love you
Hugs
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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11-10-2007, 02:11 PM
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#25
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Dear Maryann,
How did it go? You are a true survivor and I'm sure whatever it is, you will deal with it in no time. You are always in my thoughts.
Big hug.
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11-10-2007, 08:38 PM
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#26
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Maryann, Sending many prayers your way. Surgeons are the worst docs. I know, I am a nurse and have never met one that wasn't. Hang in there, you have come so far.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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11-11-2007, 09:58 AM
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#27
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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good luck on your biopsy results
was thinking of you when I read this one -just to show you progress is being made even in this, an area where there is truly little understanding:
Orphan Drug ATIR for Graft-Versus-Host Disease
On October 23, the FDA granted orphan drug designation to ATIR (Kiadis Pharma BV) for the treatment of graft-versus-host disease (GVHD), a common complication of allogeneic bone marrow or cord blood transplantation.
Bone marrow transplantation is a treatment option for patients with life-threatening diseases such as blood-related cancers, plasma cell disorders, and certain inherited immune system disorders. In allogeneic transplantation, the blood-forming cells received by the patient are donated by a family member, unrelated donor, or cord blood unit. GvHD occurs when the immune cells from the donated blood-forming cells (graft) attack the body of the patient (host).
GvHD may be mild or life threatening, depending on the severity of reaction and the part of the body affected. Patients are usually treated for 6 months posttransplant to prevent GVHD from occurring.
ATIR works by selectively eliminating the immune cells that otherwise attack the patient's body, while sparing the immune cells that can fight infections. According to the manufacturer, the drug could potentially make the safe use of mismatched bone marrow donors possible as well as improve the outcome of matched bone marrow transplants.
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11-11-2007, 11:41 AM
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#28
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Waiting For Word...
Madam Dubois. Just to let you know I am thinking of you and praying for good news from you. I support you with loving, healing energy at all times... Know you'll post when you have news to tell us. Keep checking the board for word. Stay strong!
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
Last edited by Andrea Barnett Budin; 11-11-2007 at 11:42 AM..
Reason: posted link came out of no where
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11-11-2007, 06:39 PM
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#29
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Senior Member
Join Date: Dec 2006
Posts: 63
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I am praying for good results. You need to catch a break Maryann after this year.
Best of luck,
Anne
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11-12-2007, 11:44 AM
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#30
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Still praying for good results for you.
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11-12-2007, 01:01 PM
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#31
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Decisions
Maryann,
Being so much of a pioneer over and over where there are no hard and fast rules to go by has to be very stressful. You write so clearly. I'm thankful you are putting some guide posts here for anyone else who might have to walk in your shoes as time goes by. I hope you post again soon.
AlaskaAngel
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11-12-2007, 06:50 PM
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#32
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Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
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Maryann,
I love the new picture of you!!! YOu look so awesome.
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11-12-2007, 07:29 PM
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#33
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Maryann,
Will keep you in my prayers...You are one strong SISTER!
Hugs,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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11-14-2007, 01:10 PM
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#34
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Hello My Sweet Warrior Friend!!
Sounds like someone already hit him with the stupid stick!! LOL. I am sorry to hear this part of your journey but offer my continued prayers for you, 'Great Warrior Madam Dubois'!!! I shall keep you in heart, of course you have always been there just going to keep you closer. Wishing you luck for the biopsy, please post as soon as you get the results. We will be here routing you on!!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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