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Old 04-26-2009, 07:36 AM   #21
donalddonald
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Thanks Joe!
by the way, could you tell me how to add those medical history information under the post?
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Old 04-27-2009, 12:44 AM   #22
donalddonald
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Thanks again! Joe!
Let me try !
__________________
My wife:
03/06 First diagnosed at age 33
04/06 resected ER/PR- Her2 +3
05/06 AC + TH followed Herceptin full 1 year
03/08 Right lung mets
04/08 resected
05/08 Xeloda + Tykerb (500 mg)
10/08 Brain mets
1 big (4 cm) and 3 small (1 CM)
02/09 Brain radiation
03/09 left lung spots found
04/09 Vinorelbine + Tykerb (1250 mg)
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Old 09-21-2009, 11:48 AM   #23
CourtneyL
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Posts: 260
Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

I am currently investigating joining this trial as well. Anyone else here in the trial? I'd be interested in reading about your experience. Amelia - how is it going? Anyone else? Thanks in advance for any useful information you can provide.
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
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Old 09-21-2009, 12:33 PM   #24
schoolteacher
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Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

I finished the vaccine in June. So far, so good. I miss going to Seattle once a month.

Amelia
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Old 10-26-2009, 07:15 AM   #25
margiermc
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Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

Hi, I fly to Seattle, from Tampa, FL - My last vaccine is in
November - Dr. Salazar is great. If this vaccine is not for
you, there are others, call interview them, I travel along way but, it fits for me.

I do get flight and hotel assistance.
Anyone that is on vaccination from Seattle, interested in talking with you private mess.
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Old 10-26-2009, 07:19 AM   #26
margiermc
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Re: anyone on this ? - New Peptide - Based Vacine Trial opened with the Tumor Vaccine

I go there once a month, the American Cancer Society can help with lodging.
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Old 10-26-2009, 10:21 AM   #27
margiermc
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Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

I'm on it - last one is in Nov. for me - I travel from tampa, to seattle once a month. Ive been posting im on this vaccine - would like to hear from some people.
So far - I'm doing great.

8/08 DCIS
9/08 lump, clear lymph node
10/08 - liver met., chemo ts, carb herc
1/09 - ned
6/09 - vaccine
11/09 - last vaccine

1/09 to present ned
normal bloodwork/scans
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Old 10-28-2009, 06:48 PM   #28
margiermc
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Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

They are having an open house - November 5, 5-9
in Seattle - the application, contact information is
at my website www.caringbridge.org/visit/margierose
I have about 2 links to the vaccine in Seattle with
Dr. Salazar.
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Old 12-03-2009, 07:46 PM   #29
Sandra in GA
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Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

Do you know if they are still recruiting patients for this trial?
Thanks,
Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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Old 12-04-2009, 11:59 AM   #30
schoolteacher
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Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

Sandra,

I am pretty sure they are still recruiting for the vaccine trial at the University of Washington.

Amelia
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Old 12-04-2009, 02:41 PM   #31
Sandra in GA
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Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

Thank you, Amelia.
Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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Old 03-22-2010, 01:43 PM   #32
CourtneyL
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Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

I am once again considering joining this trial. For those of you who have blazed the trail, any thoughts? How are you doing post-vaccine? Would you make the same decision to do the trial today? Any advice is appreciated. Thank you so much!
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
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Old 03-22-2010, 01:59 PM   #33
schoolteacher
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Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

Courtney,

The people at the Tumor Vaccine Group at the University of Washington are a really great group to work with. I just did a blood draw on the 12th of this month. I have not gotten any results because my blood has not been analyzed yet. I don't know how many more people are needed to complete the trial.

Amelia
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Old 04-26-2010, 01:58 PM   #34
CourtneyL
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Posts: 260
Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

I was accepted into this trial and am heading to Seattle on Monday, May 3rd for my first vaccine treatment! Keep your fingers crossed!!!
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
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Old 04-26-2010, 02:19 PM   #35
schoolteacher
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Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

Courtney,

I will be thinking about you on Monday. Please tell the staff I said, "Hello." They are a wonderful group of people.

Let me know how things go.

Thanks for participating.

Hope we are getting close to have the number of people needed to get the paper written.

Amelia
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Old 05-03-2010, 05:02 PM   #36
Amquillin
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Post Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

Hi, I finished the UW vaccine phase 3 last
May with follow-ups at my local onc every
3 months. I didn't have any problems
but I would recommend you clearly know
what amount the vaccines are for your
treatment at each time. They follow you
through you local onc for 1 year and 8
months from start. Being away from
my family and the flight cost was a strain
but virgin America is least expensive and
you can ask ACS for no cost hotels. The
trial is now in the next phase which says
it did the job and now they are going through
randomize. Very professional team and
I am happy I did it.
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Old 06-23-2010, 03:56 PM   #37
hank907@bellsouth.net
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Re: anyone on this ?-New Peptide-Based Vaccine Trial opened with the Tumor Vaccine Gr

I am new to this message board, but I did all 7 visits to U of Washington , and finished this time last year. I am so glad that I did. I have been in remission since Dec. 24 a year and a half ago , and latest CT scan shows NED . If you qualify for the study ( via Contact with Nicole Bates ) , I would recommend it . Lynn
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