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Old 09-13-2006, 12:27 PM   #1
dee
Senior Member
 
Join Date: Sep 2005
Location: Spokane/Warden, WA
Posts: 67
Anyone available to attend?

And to represent us, and give us feedback on this event? I'd go, but I am in Spokane all that week on work related business. Would like to hear how they do, and what they have to say about US. Whomever may attend, please report back! dee

TWO WEEKS AWAY:
Wednesday, September 27, 2006
in Seattle, WA

Stop the Silence: Breast Cancer Initiative

If you or someone you love has breast cancer, it's important to know about the latest treatment and research news.

Join us in Seattle to hear exciting details about new and upcoming breast cancer treatments and hear about the latest developments in combination and targeted therapies.

You'll also learn about the latest detection tools and prognostic tests that can not only help detect cancer but also predict its likelihood of recurrence.

You can also:
  • Find out about area clinical trial opportunities
  • Learn ways to get the support you need
  • Talk with other patients and caregivers
  • Get your questions answered by leading experts
Don't miss the chance to get answers to your questions from top experts in breast medical oncology and compare notes with other patients and caregivers just like you.

Don't miss out - register now

If you've already registered, this mail serves as a reminder.

Date:Wednesday, September 27, 2006Time:5:30-6:30 p.m. PDT - Refreshments
6:30-7:30 p.m. PDT - Program/Q&A sessionLocation:Seattle Cancer Care Alliance Campus
Fred Hutchinson Cancer Research Center
The M. Arnold Building Room: A-303
1100 Fairview Avenue North
Seattle, Washington 98109
(206) 667-5000 Guests:Julie Gralow, M.D.
Breast cancer specialist at the University of Washington School of Medicine and the Fred Hutchison Cancer Research Center in Seattle, WA

Michael Hunter, M.D.
Radiation Oncologist at the Evergreen Hospital, Medical Director at both the Evergreen Hospital Cancer Program and the Bellevue Community College Radiation Therapy Program, and two-time breast cancer author in Seattle, WA

Kay Tolton, R.N.
Nurse educator in Seattle, WA Andrew Schorr
HealthTalk founder, cancer survivor and program moderator

Directions:From North/South: Take I-5 toward Seattle. Take the Seattle Center/Mercer Street exit #167. Turn right at the light from the far right lane. Turn right onto Fairview Avenue North. Turn right into the main entrance on Campus Drive.

From 520 West: Exit onto I-5 South. Merge right and take the Seattle Center/Mercer Street exit. Turn right at the light from the far right lane. Turn right onto Fairview Avenue North. Turn right into the main entrance on Campus Drive.

From I-90 West: Exit onto I-5 North. Merge right and take the Seattle Center/Mercer Street exit. Turn right at the light from the far right lane. Turn right onto Fairview Avenue North. Turn right into the main entrance on Campus Drive. Parking: Free self-parking will be available.




Print out this e-mail to help remind you of this event.

Feel free to bring along a friend or relative who might benefit from a better understanding of your condition. If you know someone in the Seattle area who might be interested in this important educational program, please forward this invitation.

We wish you and your family the best of health,

The Breast Cancer Education Network Team p.s. - Please check out the HealthTalk Breast Cancer Education Network for in-depth information on breast cancer including disease basics and recent replays and talks on a variety of topics - from facing fatigue and treatment-induced nausea to treatments for advanced breast cancer and bone metastasis.

Last edited by dee; 09-13-2006 at 12:29 PM.. Reason: Formatting issue
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Old 09-13-2006, 08:32 PM   #2
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Thumbs up Will register

I plan to try and make this talk. I know all three of the presenters and they are all very good. Will also pass this on to a couple of my BC friends.

Thanks a lot for drawing this to my attention!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 09-14-2006, 12:19 PM   #3
dee
Senior Member
 
Join Date: Sep 2005
Location: Spokane/Warden, WA
Posts: 67
Was thinking of you in particular!

Welcome! and thanks for planning to share with us all, what the experience is.
dee
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Old 09-18-2006, 02:53 PM   #4
sherri
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Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
I'll be in Seattle that week and I'll go with Stephanie. Stephanie can I arrange to go with you?

Take care,
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Old 09-18-2006, 03:31 PM   #5
StephN
Senior Member
 
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Smile Sure, Sherri -

I think I emailed you my phone numbers. Let me know if you got them. I can pick you up at the hotel then we have only one car to park.
Did you register yet??

Anyone else in this area interested??

More soon.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 09-18-2006, 03:37 PM   #6
sherri
Senior Member
 
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
Yes I just registered and thank you it would be great, I have your phone and cell number. Look forward to see you!
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Old 09-19-2006, 04:43 PM   #7
StephN
Senior Member
 
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Thumbs up Wonderful

Sherri -
Looks like my younger sister will also accompany us.
She has really been too busy working and raising her daughters (with help from her hubby) to learn much about this disease.

We would need to be there by 5:30 I think to get reasonable parking, so let me know when you are getting into town and where you are staying.

I have sent the info to others so hope they will spread the word if they can't attend.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 09-19-2006, 06:02 PM   #8
sherri
Senior Member
 
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
It's great, I'll meet your sister too. I PM you for Hotel.

Big hug,
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Old 10-10-2006, 01:55 PM   #9
dee
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Join Date: Sep 2005
Location: Spokane/Warden, WA
Posts: 67
Stop the Silence: Breast Cancer Initiative MEETING

How did it go?

dee
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