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Palliative Care
Well ladies, I am offically quitting treatment. Had a long discussion with family and we all agree, that it is my choice to live a life feeling as good as I can for as long as I can, instead of chasing a dream and worring ALL THE TIME.
I know my fate and I am moving forward finally.
I feel like a huge weight has been lifted from my shoulders. No more worry and wonder. Freedom from doctors and tests and pain and more worry.
I hope everyone knows this is a personal choice and the right one for me. I am not saying it is the right one for anyone else, so please do not think I am proposing others pursue this course.
I also want to say that after reading Ira Byock's book The Best Care Possible, I felt so much better about my decision. I highly recommend it and his other book called, The Four Things That Matter Most. A must read for everyone healthy, sick, young or old. It will change your life.
So, my onc has said that with the lung involvement that has occured twice, I am looking at 3-6 months statistically. I am thinking a year!
I will be checking in with everyone to send hugs and prayers as they mean so much to all of us.
Best regards to all and enjoy Spring,
Emelie
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Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
Last edited by StephN; 04-10-2012 at 11:19 AM..
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