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Old 09-16-2008, 12:07 PM   #1
Stephanie B.
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Had first treatment yesterday
Well I had my first dose of Nevalbine yesterday. So far so good. I have been really tired, but no nausea. I have stocked up of stuff for constipation - thanks for the heads up about that. I already have a little problem with that because of the Oxycotin and Dillaudid I take for pain.

I am having a pic line put in next week so that we don't have to start an IV every time. It took 3 tries yesterday. My onc wants a pic line instead of replacing my bad port AGAIN (would be 4th time).

Thanks again for all of the info on Nevalbine,

Stephanie B.
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Old 09-16-2008, 12:48 PM   #2
Mary Jo
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Hi Stephanie,

I'm happy to hear that "so far so good" is where you are at and there is no nausea. GREAT! I pray it continues to go well for you.

Love and hugs,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 09-16-2008, 01:32 PM   #3
WomanofSteel
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Glad your first treatment went well and there was no nausea. Hopefully they all will go as smoothly.
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dx aug 03
invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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Old 09-16-2008, 04:26 PM   #4
Joan M
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Stephanie,

It looks like you're off to a good start with Navelbine. Good luck with the treatment and let us know how it's going.

Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 09-16-2008, 06:07 PM   #5
Ceesun
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I was on Navelbine for almost 18 months, I think you will do well with it. I had a bit of hair thinning but not much. Ceesun
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Old 09-16-2008, 06:18 PM   #6
Jean
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All good wishes on your treatment....you are off to a good start...keep us updated.

hugs,
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 09-16-2008, 07:58 PM   #7
Soccermom2006
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Hi Stephanie!
Just wanted to let you know my Mom was on Navelbine for 2 years and experienced some fatigue and her hair thinned a bit. No nausea or other serious side effects. I hope you will have the same experience,
gentle hugs,marcia
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