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10-09-2007, 10:50 AM
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#1
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Senior Member
Join Date: Nov 2006
Location: Bakersfield, CA
Posts: 66
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Ultrasound good - I think.
I went in for an ultrasound this morning on my "good" breast because I had felt a small soft lump and my onc wanted to have it checked out to be safe. Although I don't have the results back yet the fact that the technician checked by breast and then wanted to know where I had felt something and looked there again makes me think she didn't see anything there. Am I being too optimistic? I am supposed to see my onc on Monday for the results. I am supposed to be getting a PET before then to see if the liver mets are gone also, but my insurance is taking forever to approve it. I really want to stop the Taxol - bi weekly since Feb is long enough! I also have done something to my tailbone and have pain from that. I also have pains that shoot down the backs of my legs, but I don't know if that is from the tailbone or the Taxol! I am going to see a Pain Medicine Doctor tomorrow to hopefully get something for the tailbone and leg pain. One more doctor to add to my list!!!
Thanks for letting me rattle on.
Stephanie B.
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10-09-2007, 10:56 AM
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#2
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Stephanie,
Just had to respond and say...... What beautiful children!
I am sorry you will have to wait until Mon. for results. Waiting is the hardest part for me.
Also sorry to hear you are having pain in the tailbone and leg. Hoping you can get some relief from Pain Med DR.
Concentrate on those beautiful kids, they grow so fast!
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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10-09-2007, 11:02 AM
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#3
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Senior Member
Join Date: Nov 2006
Location: Bakersfield, CA
Posts: 66
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Thank you Donna. My kids are what keep me going everyday and make me fight this stupid disease.
Steph
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10-09-2007, 11:10 AM
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#4
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Stephanie
I hope all is well with the ultrasound, and hope the insurance approves the PET soon...nothing like waiting for them! I read in your post that you have been on Taxol since February? I feel for you! I have been on it since June, first weekly, now just started bi-weekly....I think the premeds are the worse part....I am so tired of IV Push Decadron! And the Benedryl...YUCK! It seems the worse thing I have is sore legs...my legs ache from the knees down, don't know if its the Taxol or the Avastin I'm on.
Love the picture of your children....they are precious! They grow so fast!...You are blessed!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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10-09-2007, 07:39 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Dear Stephanie
I just went through the exact same thing last week. A cyst usually doesn't appear as much of anything if it appears at all on mammogram. Mine didn't show there and I have easy to mammo breasts - not dense at all. On ultrasound, cysts appear as smooth - and are either round or oval and black (black means fluid and white means solid as far as ultrasound is concerned). When I felt it, mine was not that soft but was more rubbery - but a lump none the less and very scary. My onc said it was a cyst before I had the tests but said we had to be sure.
I'm sure you're in the same situation as it sounds similar but I know you are probably worried because I was. My cyst is in an area where I had a wide excision DCIS so I was sure it was a recurrence since I did not have radiation (due to wide clear margins and a DCIS than was only 3mm). I will be thinking about you.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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10-11-2007, 04:25 PM
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#6
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Senior Member
Join Date: Nov 2006
Location: Bakersfield, CA
Posts: 66
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Update
Well, I got the results of my ultrasound today and everything came back clear  I am still waiting on my authorization for the PET Scan  I went to the Pain doctor for my tailbone yesterday and he gave me two different kinds of medication and has be scheduled for an epidural injection of pain meds next week. I took the pain meds last night and I actually slept all night, but I also took the decadron because I had chemo this morning, so I am not sure which one helped! I also got blood work and my tumor markers we up a little which I really didn't want to hear because I want my mets to be going away so I can get off of this nasty stuff. I will wait for the PET scan before I freak out about that though.
Thanks again for listening to me ramble.
Stephanie B. |
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10-11-2007, 07:40 PM
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#7
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Stephanie,
Glad the ultrasound came back with good results. The epidural will give you a lot of relief -- trust me on this one as I get them ocassionaly. Hopefully you'll have your PET soon and that too will reveal good results.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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10-13-2007, 10:01 AM
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#8
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Senior Member
Join Date: Jul 2007
Location: Bakersfield, CA
Posts: 38
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Yeah on clear ultrasound!!!! I hope the PET thing get approved soon, we want to see those METS gone or just beat to hell.
__________________
 Age 33 at dx - 9/15/06
L breast, Invasive solid DC w/ extensive DCIS, Grade 3, ER/PR negative/ HER2 neu positive (barely)
-AC DD, taxotere, taxol w/ herceptin
-Bi lat 1/18/07, multiple foci of IDC admixed with DCIS, IDC varied from 0.1, 0.5, and up to 1.6 cm, 1/19 + nodes
Expanders in place
Pregnant when dx
Mom to 4 beautiful kiddos (boys: 5 and 14 mos, girls: 17 and 3)
Recurrence in neck lymph node and 8mm spot in L breast above expander, herceptin stopped
BRCA 1 positive
Clinical trial since 7/23/07 (PARP INHIBITOR)-NED for 9 months, supraclavicle node popped back up,..so we cut it out! Full neck dissection - only 1 positive node ER/PR negative and now HER2 negative
Currently on Xeloda and NED
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