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Old 08-26-2008, 10:57 AM   #1
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
How I spent my summer vacation

Not than anyone really NEEDS to hear this, but I fought so hard to get the "time off" from my DM1 trial requirements, that I thought I'd share the highlights from my recent 2 week vacation!

1. Traveled by car, train shuttle bus, muni bus, BART, and airplane all in one day to get from home to Virginia Beach (via UCSF!)
2. Spent 5 days alternately flinging myself into the ocean and lounging on the beach
3. Tossed jellyfish
4. Chased sand crabs
5. Drank fake beer
6. Made and shared my moms merely fantastic cheesecake (after shlepping 2 springform pans through step 1 above!)
7. Ate a lot of yummy food
8. Had a triple chocolate malt at the Purple Cow
9. Watched Judge Judy and Judge Alex(omigod - am I so glad I have a DAY JOB!)
10. Stalked (or was stalked by) Wild Bill in Richmond
11. Pondered chocolate martinis
12. Walked 30 blocks around Richmond talking with our Bill-Lee. He is EVEN BETTER in person than in print!
13. Almost fell on my A$$ in the dark restaurant.
14 Had a fabulous dinner with Bill (unfortunately, Sheila, he did not bring cupcakes - although he DID come bearing chocolate!)
15. Counted my many blessings...
16. Picked up my hubby at the airport
17. Touristed around Colonial Williamsburg, Jamestown, Yorktown. Pretty cool, living history lesson!
18. Drove ~ 300 miles RT to Arlington VA and DC - primarily to go to Pastries by Randolph, a great pastry shop we had visited 19 years ago. STILL awesome. I got a pastry that actually was TOO CHOCOLATEY. Didn't know that was possible!
19. Went to the Spy Museum (thanks hutchibk for the tip!) which was really cool - a great mix between hokey and creepy! Trust no one.
20. Saw the Lincoln memorial and the WW2 memorial. The WW2 memorial is new, and very cool. I thought it beautiful, moving, and very appropriate to what it was commemorating. I cried of course. You should definitely see it.
21. Got 2 free tickets and first class flights back to San Jose by booking on an oversold flight.
22. Final highlight of the trip: Our rerouted flight took us through Chicago with JUST ENOUGH of a layover to call my sister who ordered and delivered us PIZZA! Which we ate in the baggage claim.

23. First day back....UCSF labs, echo, PET/CT, office visit ALL in one day! But well worth it!

I know nobody cares about my vacation...but it was so good to just get away...I'm so lucky to have my medical team "get" that the reason we're in treatment is so we can HAVE A LIFE! And squeeze every last minute out of it.

The highlight of course....RICHMOND! (and Randolph's!)
Bill - when are you coming to California???? I've got a 6 mile hike all picked out...
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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