HonCode

Go Back   HER2 Support Group Forums > Caregivers Corner
Register Gallery FAQ Members List Calendar Today's Posts

Caregivers Corner Dedicated to those who support their loved ones.

Reply
 
Thread Tools Display Modes
Old 10-15-2008, 07:30 AM   #1
Joe
Webmaster
 
Joe's Avatar
 
Join Date: Feb 2005
Location: Home of the "Flying Tomato" Carlsbad, CA
Posts: 2,036
Images: 5
10 Ways To Suport a Spouse With Breast Cancer

http://breastcancer.about.com/od/sup...pport_tips.htm


Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.

Illegitimi non carborundum


My Album
Joe is offline   Reply With Quote
Old 01-27-2009, 11:02 AM   #2
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
The text:

Treatment for breast cancer made me feel very sick. Fortunately, my husband, Karl D. Stephan, stepped up to the challenge of suddenly becoming a home caregiver, while also holding down a full-time job. I asked him for his top ways to be supportive when your spouse is in treatment for breast cancer. Here's what he had to share.
1. Be There

The person with breast cancer needs you now more than ever. But the patient won't be fun to be with all the time. So, don't give into the temptation to hide from the situation by getting busier with work, hobbies, or other things that keep you away from the patient. It's no fun holding a woman's head while she loses her cookies, or holding her hand just before she goes into surgery. But she'll remember what you did for her later.
2. Advocate

Though she may be a fighter by nature, a woman with breast cancer is often in no shape to battle hospital bureaucracies, insensitive doctors, thoughtless nurses, or anyone else, especially you. It's your job to take her side and ask the hard questions, pound the receptionist's desk when you're being ignored, and act in her best interests. Even the best medical care personnel get too busy or preoccupied. And when that happens, you need to act to make sure your patient gets the care she needs.
3. Organize

Maybe you're not a born organizer. But you can keep track of doctor's appointments, medications, prescriptions, hospital bills, test reports, and the hundreds of other pieces of paper that a typical treatment sequence for breast cancer generates. Not all of these papers are important, but you don't want to lose the ones that are. And your patient will be relieved not to have to keep track of them herself. 4. Encourage

There will be times when you both feel like crying. Go ahead. But make sure you're the one handing out the hankies, not your patient. She needs an emotional anchor, and you're it, whether you like it or not. Sometimes not saying anything is better than saying the wrong thing. But if you're there, advocating, and organizing, your actions tell her that you care, even if you don't have the words to say it.
5. Act Normal

Whatever is normal for you, that is. Cancer doesn't mean the world has to grind to a halt. If you and the patient have normal routines and things you enjoy doing, try to keep them up to the extent possible. But always be sensitive to physical fatigue, emotional stress, or other reasons for not doing things you used to do, and give into the needs of your patient.
6. Be Honest

Most people today would rather hear the truth about their medical condition than a sweetened-up lie. This doesn't mean being needlessly cruel, however. When you both face the same facts together, whatever they are, you can act together and stay together through the treatment.
7. Don't Leave

If you're like most men, you look to your wife or girlfriend to supply needs or wants you have for affection, companionship, and sex. Some guys have the attitude that, "If a woman can't give me what I want anymore in these departments, I'd better drop her and find another one." This is the absolutely worst thing you can do to her at this vulnerable point in her life. A woman can get over cancer, but she'll never get over the deep and lasting emotional injury you've given her if you abandon her now. And neither will you. Don't do it. Stay with her, even if you're not that happy with the situation. You'll both be better off together than you'd be in Splitsville.
8. Ask Your Friends For Help

The two of you don't have to do it all by yourselves. Friends, neighbors, relatives are there to be asked for help. Not all of them will, but you will be surprised at what some people will do if you just ask them. Seek their help in driving to appointments, staying with the patient while you're at work, or doing errands you normally do but don't have time for anymore.
9. Expect Weird Reactions From Some People

Everybody has a different attitude toward cancer. Some people will get up and run away if you try to tell them what's wrong with the patient. Others will cry, get angry, or ignore the whole situation. You can't control their reactions, but you can control your reactions to them. Don't volunteer the information that your patient has cancer without a good reason. On the flip side, don't try to make it a deep dark secret either. And let the people you tell deal with it on their own terms.
10. Pray, Meditate . . . .

Whatever your spiritual beliefs are, understand that those beliefs are a part of the situation too. You and the patient will need a lot of resources to win, more than you can muster up on your own. Don't neglect your spirituality in this fight. It can connect you with the source of your greatest strength
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
Jackie07 is offline   Reply With Quote
Old 01-27-2009, 11:08 AM   #3
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
Caregivers are angels. And angels can fly...[away ]

Reviewing Joe's posting made me realize how difficult it is for caregivers to 'be there'. Thank you, guys (and gals.)
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 01-30-2009 at 06:39 PM..
Jackie07 is offline   Reply With Quote
Old 01-30-2009, 03:45 PM   #4
hermiracles
Senior Member
 
hermiracles's Avatar
 
Join Date: Oct 2007
Location: Australia
Posts: 309
Thanks for posting this again Jaquie - it really is pretty amazing! - our carers are pretty amazing!! They have a lot to go through too... and some of them don't make it!

Im gonna print this out and give it to my hubby - he has SO much on his plate - caring for me and our beautiful bubs! I call him my Wiradjuri Warrrior and try to think of ways to be more supportive of him... its hard to find a balance.

Thanks again Jacquie - a good reminder.
Blessings
Hermiracles
__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************

Last edited by hermiracles; 01-30-2009 at 03:48 PM..
hermiracles is offline   Reply With Quote
Old 01-30-2009, 03:48 PM   #5
hermiracles
Senior Member
 
hermiracles's Avatar
 
Join Date: Oct 2007
Location: Australia
Posts: 309
PS I'll learn to spell one day Jackie! :-))
__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
hermiracles is offline   Reply With Quote
Old 01-30-2009, 05:17 PM   #6
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
No problem, 'mate'.

Found this about the Wiradjuri Warrior:

1823-1825 Wiradjuri War

As settlement spread west of the Blue Mountains, misunderstandings and conflicts with Aboriginal people escalated.
In Wiradjuri country, colonists attempted to drive off Aboriginal people by violating significant sites and contaminating waterholes. On occasions, they gave friendly Aboriginal people poisoned flour or bread. It is believed that the family of the warrior Windradyne was given potatoes by a farmer and that the family was shot when they returned to take more.
When martial law was declared, Windradyne and his people launched a guerrilla campaign. They frustrated the poorly organised British forces, who began to attack any Aboriginal people they could find. Windradyne and the Wiradjuri remained unvanquished.

<http://www.nma.gov.au>
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 02-03-2009 at 03:42 PM..
Jackie07 is offline   Reply With Quote
Old 01-30-2009, 06:14 PM   #7
Faith in Him
Senior Member
 
Faith in Him's Avatar
 
Join Date: Jul 2007
Location: Northern California
Posts: 764
I agree that the caregivers do so much for us. I would love to show my appreciation to both my wonderful husband and mother. So, caregivers, could you share how you would like to be appreicated?
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
Faith in Him is offline   Reply With Quote
Old 01-30-2009, 06:36 PM   #8
Colleens_Husband
Senior Member
 
Colleens_Husband's Avatar
 
Join Date: Jan 2008
Location: Oregon City
Posts: 856
Faith in Him:

That is so easy to answer. Get better, stay healthy, and live a long life. What more could I possibly want?

Lee
__________________
This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
Colleens_Husband is offline   Reply With Quote
Old 01-30-2009, 09:46 PM   #9
Faith in Him
Senior Member
 
Faith in Him's Avatar
 
Join Date: Jul 2007
Location: Northern California
Posts: 764
Well Lee, I think you said it all. Thank you.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
Faith in Him is offline   Reply With Quote
Old 02-01-2009, 09:51 PM
Jackie07
This message has been deleted by Jackie07.
Old 02-01-2009, 10:02 PM   #10
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
...and don't yell at him (her) - my husband started making the statement "Don't yell at me!" after my recurrence and subsequent job loss. I guess that's what 'honest' is about - communicate directly about our feelings and actions.

He's afraid that his 'nice' wife would become another woman (acting like someone else... somebody he couldn't stand...)

ps. I just posted a biography of Fr. Robert J. Ronald on Profiles of Courage. He's a model 'patient', full of kindness, encouragment, and never raises his voice. "Bob's care provider of the last seven years claims that Bob changed his life through his kindness and patient companionship, always reaffirming and encouraging, never scolding, criticizing or complaining." We most likely don't have the training of a priest - and not all clergies have good temprament. But just thinking about him calms me down. 'Having a sense of humor' is how he deals with life. Can you imagine him letting us read the comic 'Batman and Robin' in class? I have been forever quipped as 'Batgirl' by one of my colleagues and classmates - also one of my best friends - because I had read the part.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 02-03-2009 at 08:06 PM..
Jackie07 is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 02:55 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter