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Old 01-31-2009, 07:25 PM   #1
jhandley
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feeling a bit down

Hi
I am 3 weeks out from scans and know I have a lot to be thankful for..but lately I have been feeling teary and a bit lonely. I haven't been in a relationship for 10 years and 8 of those I have been a cancer survivor. I really would like to have a close friend to go through life with but it is a bit daunting as to how to proceed.
Any thoughts?

Jackie (down under)
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Old 01-31-2009, 10:02 PM   #2
Bill
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Hi Jackie! I know how the lonely and teary thing can be. If I lived in your town, I would take you out for a nice quiet dinner and give you a big hug, and we would talk until the wee hours. I'm sorry that I can't. You are such a sweetie. I wish I could help more. Love, Bill
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Old 02-01-2009, 04:38 AM   #3
Mary Anne in TX
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Hi Jackie!
I think as we pass through this jouney as part of our life, we become so much more aware of just how valuable and sweet it is to have those special partners and pals to make the trip with! Why not volunteer somewhere, visit a new church, try a new bookstore or something and do things you've always thought of doing. I'm sure no good at advice, but I surely will say a prayer that you get smacked with a new friend very soon. ma
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Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
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Old 02-01-2009, 11:53 AM   #4
ElaineM
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Wink feeling a bit down

Mary Anne in Texas had a good idea. So did Bill.
Do something for yourself. It is okay to be a bit selfish once in awhile. I like going to a bookstore that serves snacks. I browse for awhile and then I sit down with a nice cup of something good and people watch. I wonder what kinds of books those people are interested in.
Once when I was so overwhelmed I got on an airplane and flew to another island for three days and didn't tell anyone where I was going. I had a wonderful time and came back refreshed and ready to get back to my routine. I guess you don't have to go that far. Smile.
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12 years and counting
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Old 02-01-2009, 06:56 PM   #5
Laurel
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Jackie,

I suppose if you are seriously considering dating why not let friends, family, and co-workers know you are ready for socializing? People all know someone who is divorced, widowed, etc. who are just like you sidelined by circumstances and unsure how to meet other eligible potential companions. It isn't easy once you leave those younger years to meet others. Civic organizations, church, and hobbies get you out among people. Try and be a "joiner" for a bit. I think your horizons will broaden enormously! Go for it, Girl!
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Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 02-01-2009, 07:47 PM   #6
Jackie07
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Jackie to Jackie

There are more boys born than girls. But 'men' are prone to having accidents and don't live as long as 'women'. So, starting a certain age (50?), there are more women than men.

One of our Her-2support members is happily dating right now. And I remember how it felt before I finally got married at 28.

I was too tall for most of my fellow countryman - so I (unconsciously) came overseas. I was having too much education for many available 'bachelors' around town - so I (unknowingly) dated a young(-looking) man who were two diplomas behind (since then he had caught up one, but the next one has been interrupted by my illnesses.) Everyone thought he was a doctor since we live in a big medical town and he looked 'brilliant'. But he is not.

We've had so many up-and-downs - we would have been able to save enough for retirement since there's no child-care expenses. But we seldom worked full-time jobs at the same time because of all the medical procedures - besides my four major surgeries, he had had 2 stents put in his heart in 2002.

Both of my two (older) sisters have been married for over 25 years. Both of them met their husband through blind dates - so were my parents (60+ years of marriage) and my In-laws (58 years before my Mother-in-law passed away). And I always thought I met my hubby through a blind date arranged by God (we met in church).

I think getting the words out - that you are ready to seek companionship - is the first step. And you've done it. But the only bachelor we've got - Bill - has been snatched away already. So let's hope the words would spread out through more circles.

Keep in mind one of the most popular slogans these days - 'Yes, we can!'.
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NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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Last edited by Jackie07; 02-03-2009 at 10:28 PM..
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Old 02-02-2009, 10:23 AM   #7
Shobha
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My prayers and good wishes for you, Jackie. May god bless you with peace and joy and find you a wonderful companion for life!
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DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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Old 02-02-2009, 02:06 PM   #8
StephN
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Wink have a go ...

Hi Jackie H -
We have been down a long road together over the years! Fighting those mets side by side, blah, blah ...
Got to NED and need to get somewhat out of the warrior mode.

Was chatting with my hubby about how this disease changes us and especially fighting mets. I did become a bit of a hard ass (pardon my bold talk) but partly because I did not have the energy to be my normal, cheery self. So I was more curt and grumpy at times.

This mode is not very conducive to socializing and then the effort saps energy for a few days. Getting some stamina and energy back I have found has been key to feeling happier and more like doing things out of fun rather than mere duty.

Having our kind of cancer also puts us on the defensive, and this can carry through to area of our life where we would not normally show that.

Don't know if I am making any sense to you, but just to say that making some conscious decisions and keeping those in the forefront has helped me to recover some of my natural behavior.

Maybe Fran Drescher's method of putting her idea of a companion out into the "universe" might be a good way to open yourself up.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 02-02-2009, 04:13 PM   #9
tricia keegan
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Jackie, I don't have any advice for you but just wanted to say I'm sorry you're feeling down and really hope you find that special someone soon..
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 02-03-2009, 10:01 PM   #10
vickie h
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Jackie, I know those feelings of lonliness and sadness and they can be debilitating. I have friends around me , family, and the best husband I could ever dream of having, yet there are times that lonliness takes over. It is a different kind that skulks and shadows the background of our lives., I believe it is an accumulation of all that we have been through. Some feel that being NED or "cancer free" is the goal, when it is also our mental well being, spiritual awakenings and being in touch with our feelings that matter the most. Without these, we are just a body without organic disease, but without the others we are lost and alone. This journey has taken us to uncharted waters, murky and unknown to all of us ,and time and love and understanding seem to be the awakening we really seek. God has always been there with you and he will continue to lead you up paths filled with learning and committment. The journry never ends, but the joy awaiting you is right inside your own heart and soul. Ant mate would be thrilled to find you, and find you they will. Keep walking ahead and don't look back...you are on the chosen path. Love, Vickie
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Life's not about waiting for the storm to pass,
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Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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Old 02-04-2009, 12:07 PM   #11
Believe51
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Smile

Hey Buddy, wondering how you are feeling today?? Wanted to let you know I love you and send a giant cyber hug to certify it with. Hope you are feeling better with all my heart!>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 02-04-2009, 12:34 PM   #12
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Jackie, it can be lonely and frightening no matter what kind of relationship you are in. To most people it is over. You are well and you should move on. Even if they don't say it, I feel like I hear it. After treatment (and I have had nowhere near the years that you have had) I felt like a hermit. I still have to make myself get out and attend things. For me it is art shows and art guild meetings. Maybe you could get involved in a group where you could meet people with similar interests. On a lighter note, one of my friends told me the other day, that you should start making close women friends now, because if you don't you will be lonely someday, you'll have outlived all the men. If you need a lift and a laugh read the Sweet Potato Queens Book of Love. It is outrageous.
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Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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Old 02-08-2009, 03:54 AM   #13
jhandley
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Smile thankyou all

...for your thoughts. I seem to get these mood swings very occasionally luckily they ony last a few hours to a day. Just spent the weekend at my house in the country and feeling a lot better. Also I have started a new job and my daughter has started high school...something I wasn't sure in 2001 I would be there to see.
So all going well and I am keeping an "eye" out for some social interaction.
Jackie (down under)
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