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Old 10-03-2006, 06:47 PM   #1
Joe
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HER2 Support Group Annual Brunch - SoCal

The HER2 Support Group wishes to host their annual Sunday brunch on October 22nd 2006 at The Quail - Lake San Marcos Resort.

Brunch is served from 10:AM - 2: PM.

Please reply if you intend to join us.

Hugs
Christine and Joe
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Old 10-04-2006, 04:23 PM   #2
Stephanie
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Hi, Joe--

My mom Marie and I will be there. What time are you planning on getting there?

Looking forward to seeing everyone,

Stephanie
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Old 10-10-2006, 08:19 PM   #3
Adriana Mangus
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Brunch @ Quail's Inn in San Marcos

I would like to attend, what't the cost? And is it open to non-bc survivors, such as a buddy of mine..Thanks Joe.
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 10-10-2006, 08:45 PM   #4
Joe
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We havn't set a time to arrive yet. We will pick up the tab for one bc survivor and caregiver.


Regards
Joe
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Old 10-11-2006, 03:05 AM   #5
chrislmelb
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I would love to attend but..............

I will be a pillion passenger on the Pink Ribbon Motorcycle Ride in Melbourne. We are 'special guests' and will be well looked after as we slowly make our way to Healesville accompanied by a police escort.
Please take some photos for us to see your gathering, and i'll take one of me.
Christine
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Old 10-12-2006, 09:15 PM   #6
Tami
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I would like to come but need to leave by 1:00. Please let me know the time.

Thanks
Tami
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Old 10-14-2006, 02:59 PM   #7
Joe
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Start Time

We plan to start at 10:30 AM

Regards
Joe and Christine
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Old 10-15-2006, 03:52 PM   #8
Esther
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Joe, I would like to come, but am not sure if I will be physically able. I am now scheduled for surgery to remove a lesion from cerebellum on Wed the 18th at Cedars-Sinai.

By when will you have to know for sure?
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Old 10-16-2006, 09:56 PM   #9
Joe
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Esther,
If you and Chris vcan make it, it would be great. If not, we understand.

Our prayers will be with you on Wednesday.

Christine and Joe
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Old 10-18-2006, 05:26 PM   #10
Moni
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What about a gettogether for South Texas?

Joe - is it possible by any chance to get people together for South Texas? I've seen some regular people from the area and I thought it would be very interesting.

I'd be more than happy to organize a start-up here.

Thanks,
Monika
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