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Hi Doug, glad you're starting to feel better, and don't ever hesitate to question the pre-med protocol as it's not uncommon for things to get "missed", "skipped", or otherwise lost-in-translation. Ask if you're being given decadron as one of your IV pre-meds, as I couldn't believe what a difference this med made for me while on Taxol, Carbo, Avastin. I was only given it once weekly at infusion, but it carried me through the worst of the side effects and even gave me more energy than I was used to having. Worthwhile to ask if you're not already getting it!
<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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