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Re: Please post your two cents on Herceptin "side effects" real or perceived!
i just started herceptin on october 8th and am currently getting it weekly for my 18 wk chemo tour of duty. i am salivating like pavlov's dog. i'm assuming it's herceptin since i haven't had chemo for over 2 wks at this point. it's weird, but better than having my eyes tear, which happens for about 2 days after H. i've also started having morning headaches and wasn't sure if it was storm Ida that caused it (i get barometric pressure related head stuff) or herceptin. i'm thinking herceptin. the latest is that my whole head feels swollen. i mean literally swollen - my wigs suddenly feel too tight! now that is really annoying. i dig my wigs, especially Desiree, and i don't care to do the scarf or bare head thing at work. one time, though, Desiree was itching me bad (again, i have no idea why that day and no other) and so i took her off and hung her on the coat rack over my pink winter coat, which looked quite comical. i passed the day in my little black velvet oliver twist cap. i have yet to brave going bare-headed (except in my house and backyard). i've developed a fascination for petting my freshly shaved head. velvety soft!
valerie
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8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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