HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-22-2009, 10:37 AM   #1
Andrea Barnett Budin
Senior Member
 
Andrea Barnett Budin's Avatar
 
Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Smile Learning to live *as if*.

I get PMs and e's from HER2 Sisters that always touch my heart. I am struck w/the wisdom of these ladies, investigating every avenue possible, to try to become more insightful than they already are. To seek assistance in gaining the upper hand in dealing w/bc.

Oft asked questions -- were you always so positive. Yes. Guilty. I had a difficult childhood and had to learn to overcome daily tirades, criticisms, accusations, and what frankly were abusive pronouncements that could have crushed me. Somehow, I instinctively learned to go to my quiet place (my bathroom which was the only room with a lock). There I could escape. The raging mine I have always loved and called Daddy would have beaten me if I hadn't run faster than the wind. I would stay there in my safe room and sob into a towel (so as not to further exacerbate the giant man with anger management issues -- who I now can see as a suffering and lost Soul).

I would go within. Deep within myself. Seeking refuge. And there I would always find it. I now understand what was occurring. I was making contact with my Higher Self, my Spirit. It is wise, with eons of knowledge and enlightenment. It wants what I want, only even more for me. It loves me with an intensity that is staggering. There, deep inside mySelf I would find profound nurturing. It assured me that I was indeed a good person, much loved, full of an infinite sense of Belief that tomorrow would be better.

Older and intellectually advanced beyond my childish Self, having expanded my awareness through the trials of facing 4th stage bc and death itself, I have found a way to feeling joyful and serene even in crisis.

When I connect with my Truest Self I become so incredibly empowered. I can reprogram my fearful, anxious, uncertain thoughts! I had no idea! I had thought what occurs in our minds must be endured. That we were powerless to stand up to the taunting, haunting words and images that lived in our heads. But, I've learned (from my bc experience) to go beyond my usual instincts and to actually take control of my Beingness.

We are not helpless victims. We can insist that we will follow our Spirit's direction. We can shut out the I'M JUST AFRAID THATs echoing and replaying over and over and over again in our heads. True, we must hear them and experience them. It is unwise to repress or suppress our feelings. But, we can indeed cast them out and replace them as soon as we possibly can with our CHOSEN dialogue.

When I was first dx, I kept telling mySelf that I can author the thoughts that will play out in my head all day. Stomp on the fearful thoughts and instead instruct my mind to order my body to heal. We are in fact given this power as our birthright! CANSER IS ALL ABOUT FEAR. Conquer your panicky feelings, which are entirely natural to be sure, and you will find yourSelf living happier, healthier days, full of KNOWINGS and newfound PEACE. True, you have to work at it. You have to learn to monitor your thoughts all day, every day. Surviving for me has been a full time job. 24/7 as they say. But soooo worth the results it brings.

I would, and still, remind mySelf that I AM STRONG, BRAVE AND DETERMINED. Yes, I knew I wasn't as strong or brave as I wanted to be, but I lived AS IF. As if that was at the very least my goal. I drummed it into mySelf. And others kept commenting that they thought I was amazing. Because when they looked at me and what I was going through (the surgery, the sacrificing of a breast, my long, thick hair, my -- seeming -- wellness and ability to do as I wanted) what people saw on my face was, in their words, a glow! What is that?, they'd ask, wanting to know. What they saw was joy (which came from me feeling lucky, believing it could have been way worse). Joy in the tiniest of blessings that I began to take notice of. The fact that I could walk, talk, feed myself, bathe myself. My Family. My Friends (the ones who stood by me in my darkest hour and didn't run and/or hide like cowards). Joy found in being fully PRESENT in the NOW.

And they saw SERENITY. Where'd that come from? I BELIEVED with all my heart that my thoughts had power. They are heard by my body, and responded most definitely! So, thoughts like, what if this headache means I now have brain mets need to be discarded like a hot potato! Lest they be perceived by my body as a direct order.

And -- lest they be heard, and responded to, by the Universe itself. It is a giant energy field that sucks up the energy we emit. If we are sending out negative signals, we will draw exactly more of the same to us. However, if we CHOSE to consciously and conscientiously send out energy that is full of: LOVE, JOY, GRATITUDE, APPRECIATION, COMPASSION, KINDNESS, CARING, GENEROSITY OF SPIRIT -- that is precisely what we will draw into our lives, which will absolutely effect our health and well-being.

I say live each day AS IF you KNOW with inexplicable certainty that the Universe is working with you to create the manifestation of dreams. BELIEVE in your Personal Empowerment.

I meditate. Beginning with deep breathing exercises. Using guided imagery. Finding my happy place and revisiting it whenever I become overwhelmed. I had learned from a book how to self-hypnotize and began reading about methods of meditating. Music (especially Andrea Bocelli's Romanza) literally helps transport me. Relaxes me to a point that I can do the deep breathing, excise all pent up negativity, suck in fresh, life-affirming air. I will be happy to share details if anyone is interested.

Just as I would emerge from my safe room in childhood, I emerge from meditating with a happy, beyond hopeful sense of well-being (physically, emotionally, psychologically and spiritually). It's a life-altering gift you can give to yourSelf.

I read books that have enormously assisted me in attaining my strength and my courage. I come from a long line of stubborn, doggedly determined people, which has served me well in reaching 15 yrs of survival.

Sept 3 I will turn 65. I was 50 when initially dx. My Calif dghtr has moved in with me, relocating to Fla. (See my post to Flori on her awesome news re details of this, if you like.) So I have gone from having only 1 dghtr married to having both my girls find their mate for Life. I have gone from having no grandkids (at age 50) to having 5 of the grandest of grandchildren. 3 live in Boca, same as me. Well, actually, NOW, 2 live in Boca in my house. We'll see where they eventually move to, but it will be in southern Fla, probably closer to the Univ of Miami. (Again, see my post in Flori's remarkable news thread to further explain.)

I will be celebrating my 15 yrs of survival and my big Bday w/all my Children! That is the best gift I could have asked for. I need nothing. All I ever wanted was to have all my Children living in the same state with me. I feel so blessed -- I AM SHOUTING FROM THE ROOFTOPS.

Tomorrow will be better, my sweet Sisters! You have the power to heal yourSelf. Do your part, along with your oncs, nurses, chemo, radiation, supplements, conscientiously balancing your Omega 3s w/those bad 6s, eating less meat, less processed foods, wild caught fish, maybe forgoing sugar till you reach remission, reading books that help you expand your understanding of Life and grant you fresh insight, meditating daily, visualizing yourSelf far far far into the future!!!!!!! With the absolute power of FAITH, BELIEF, CERTAINTY. SEE YOU THERE.

For me, make up, a wig, earrings and a nice comfortable outfit made me look healthy and well. Others couldn't believe I didn't look sick. I surely felt like crap from the chemo (chills, fluish, aches everywhere, that metallic taste and inability to eat, no energy, you know the deal). But the compliments helped me FEEL better somehow. I forced myself to go out to dinner w/Friends, the ones I truly loved being with. I did this for my Husband, who was an angel and suffered along with me. He needed to get out and have a semblance of normalcy in his life. And so did I. Hugs and laughter over a shared meal with wonderful people you adore is healing in itself. After being dx, I hugged more people more readily than ever before. And I am a hugger. My hugs became longer, tighter and filled with a fresh passion. People awwwwwwed from the love I was transmitting. That was really nice. And after dx, I began saying I love you to people who were so kind and sweet and dear, even if they were practically strangers. The words just came out of my mouth, directly from my heart...

To you, my amazing Sisters, I say -- BE WELL. Get well. Focus on all your attention to that end. Take good care of YOU! Be extra good to YOU. Be your own best friend. What would you tell a dear Friend in your position??? Think about that.

I love you all... You are always on my mind... I swear...


Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
Andrea Barnett Budin is offline   Reply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 09:55 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter