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Old 11-16-2014, 03:56 PM   #21
thinkpositive
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Re: YES!!! It is here. Phase II vaccine trial for Her2 3+

Lizbeth,

Thanks for your post. You are absolutely right. I'm very grateful to have achieved a pathological complete response. I should just focus more on that rather than on not being eligible for the trial. I appreciate the reminder.

Having the trial opened to other HER2 folks is huge!

Take care
__________________
8/2013 Diagnosed IDC Left Breast ER-/PR-/HER2+ Stage 3C, DCIS ER+/PR+/HER2- Right Breast (54 yr)
8/2013 PET/CT scan shows mass in uterues and suprclavicular nodes
8/20/13 Begin 6 rounds TCH chemo, Perjeta added for rounds 4-6
9/2013 After 1st round of chemo, mass in neck and breast no longer able to feel
11/2013 Hysterectomy, mass from PET/CT scan not cancer (adenomylosis)
12/2013 Finished chemo
1/2014 Double mastectomy with chest expanders
1/2014 Pathology report from surgery and SNB show complete pathological response!
3/2014 Finish IMRT radiation
8/2014 Fat transfer to radiated breast
8/2014 Completed 1 yr of Herceptin
10/2014 exchange surgery expanders removed implants placed
6/2015 3D nipple and areola tattoos
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Old 11-16-2014, 07:59 PM   #22
'lizbeth
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Re: YES!!! It is here. Phase II vaccine trial for Her2 3+

I know there is more information out there about the pCR- as we on the board have discussed it. Still looking, but I think the prognosis is very very good.
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Old 11-17-2014, 08:09 AM   #23
sandra85208
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Re: YES!!! It is here. Phase II vaccine trial for Her2 3+

Hi I hope you are well. I am in Minnesota. I was in a clinical trial in 2011. so far so good. But it has been a long a painful journey. Lots of surgery and depression, stuff like that.
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5/06/DX: Stage 3 B Her2 positive

7 cc tumor positive lymph nodes

6/24/11 12 weeks of Taxol and 12 weeks of neratinib clinical trial for late stage cancer

I spy clinical trial drug for 12 weeks
240 mg of neratinib q day

10/11/1011

8 weeks of A/C

12/06/11 Surgery # 2
double mastectomy both breasts

1/31/11
35 rounds of RAD

1/31/11
Herceptin 13 treatments

6/06/12
inserters Surgery # 3

05/26/13
Implants Surgery # 4

11/26/13
Removal of Right Implant
Surgery # 5

therapy, therapy, therapy
Depression from hell

Stopped working

11/04/2014
Reconstructive Surgery #6

seeing doctor today
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Old 11-17-2014, 11:50 AM   #24
'lizbeth
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Re: YES!!! It is here. Phase II vaccine trial for Her2 3+

Sandra,

My best advice is exercise. Not only is the benefit from aerobic levels shown to reduce recurrence of cancer, but it also helps with depression.

Force yourself to get out and try walking, jogging, hiking, bicycling, running, aerobics class, swimming or anything else that gets the heart rate up between 45% - 60% of your maximum heart rate.

You can google studies on METs (a measurement of breath).

I feel for you on the depression. Start looking for little things that give you pleasure: music, art, dance, writing, socializing, movies.

Medications can help, but fight depression on all fronts is how I feel.

Good luck
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Old 11-17-2014, 12:54 PM   #25
'lizbeth
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Re: YES!!! It is here. Phase II vaccine trial for Her2 3+

Oh, and don't do an extreme amount of exercise if you've been sedentary. Build up. Check with your doctor if your heart was affected by treatment, then be more cautious.

Be aware of recovery heart rates. The heart should be in recovery mode about a minute after exercise and the heart rate will start returning to the resting rate.

Any questions ask your doctor.
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