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Old 05-06-2016, 08:55 AM   #1
KathyT
Senior Member
 
Join Date: Mar 2014
Location: Glendale, AZ
Posts: 209
Brain mets

Hello! It has been a long time since I posted. I was just diagnosed with pituitary gland mets(hormone+/Her2+). No other cancer found in the brain and will probably do gamma knife radiation at Barrow's Neurological Center at St. Joe's Hospital. I am so lucky to have this Center near me. I have to say I am still in denial. I am having a pet scan to see if there are mets anywhere else.

My question to you wonderful women is do you have any suggestions? Any clinical trials that you know of, any questions I should ask?
Any of you women going through this or have gone through this? I would love to talk to you!!
__________________
Kathy
38 years old!

January 17th 2014-mammo, ultrasound, biopsy
January 20th 2014- diagnosed, ER/PR+, Her2+++, Stage 2A
January 21st 2014-MRI, right breast only plus lymph nodes
January 23rd 2014- Pet scan-2 cm tumor, 3 lymph nodes
February 4th 2014-port insertion
February 12th 2014-first chemo treatment(TCHP x6 cycles)
May 28th 2014-LAST chemo treatment!!
July 10th 2014-double mastectomy
July 29th 2014-start radiation(30)
Sept. 11th 2014last radiation treatment!!!
November 12 2014-started Tamoxifen
January 20 2015-reconstruction begins, lat flap
February 4 2015-last Herceptin treatment!!
April 24, 2015- pet scan-NED!!
June 3 2015- exchange surgery, port removed!!
September 8 2015-hysterectomy/oophorectomy
September 15 2015-Revision of lat flap reconstruction
December 23 2015-nipple reconstruction
May 9th 2016-Mets to pituitary gland, liver and C7 vertebrae
May 10th-port put back in:(
May 17th- biopsy of mass on back
May 19th-started Herceptin/Perjeta
May 20th-5 treatments Cyberknife to pituitary gland tumor
June 9th-Started THP (will have 6 cycles)
August 17th-MRI of brain, significant reduction in tumor
😃, repeat MRI in 3 months. Received first Zometa
infusion.
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