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Re: Triple Positive
Hi! I was aalso dx'd triple positive in 2005. At the time, Her2 was a very dire diagnosis. My first oncologist told me that there was very little I could do. Have a lumpectomy, get radiation, take arimidex. I was very upset and went for a 2nd opinion. That doctor recommended an entirely different scenario, which you can see by looking at my signature. At the time Herceptin had not been approved for early stage bc. My oncologist prescribed it "off-label" because she felt that great things were about to happen with Herceptin and early stage bc. At the time getting chemo was a requirement to be able to get Herceptin. Halfway through my year of Herceptin, the FDA approved its use in early stage breast cancers. That was more than 11 years ago and I am happy to report that I am doing well. I encourage you to stick close to this site if you ever have any questions or concerns, chances are, someone has already asked!! You can search the site by topic and find a wealth of information. I will speak for myself, I think the women and men on this site have done their research, advocated for their health and are very very informed. We live this "dis-ease" every day, very well!!! :-)
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 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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