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11-23-2012, 06:35 AM
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#2
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Senior Member
Join Date: Jul 2011
Posts: 954
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Re: "My Last Days"
You guys wanna talk about this after you watch the videos?
Paula
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11-23-2012, 08:37 AM
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#3
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Senior Member
Join Date: Jan 2012
Posts: 362
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Re: "My Last Days"
WHoa....I cried after both. My heart breaks for them but I am going to do what Chris asked us all to do. I am known as the Cupcake Goddess and I have a large following on facebook. Immediately after watching his video I uploaded a new tradition (and first one actually) to the page. A Holiday Gingerbread House Contest. I'm a baker and creating a gingerbread house contest is my way bring my baking community together...in a loving way.
__________________
DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.
www.mychemobag.org
www.facebook.com/mychemobag
8 YEARS NED
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11-24-2012, 05:38 AM
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#4
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Senior Member
Join Date: Jul 2011
Posts: 954
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Re: "My Last Days"
Good for you, Europa on initiating the Gingerbread House Baking Contest! You go, girl. :0) I like how you are bringing the Baking Community together with this fun project and it is going to happen because of YOU arranging it. Way to go.  I bet lots of us would enjoy a link to pictures of the winners when that happens if you don't mind.
It hit me how young these guys were with such tough diagnoses yet I see life on this side of Eternity as a blink of the eye even if we live to 100. I appreciated the reminder not to put off Bucket Lists, to live life fully and purposefully, and that there is wisdom in making preparations physically, spiritually, emotionally . I liked what Chris did for his children in leaving them with a legacy with the letters from him in the binder that they could open as they were ready. He also bought future birthday gifts for them.
I saw another program years ago of a mom who was dying of breast cancer and she knew she was near the end stage so she made the effort to leave beautiful treasures for her daughters that she soon would be leaving by sharing her wisdom and love by video ahead of time to be viewed on their High School Graduation, the day of their wedding, things she wanted them to know when they had their own babies but knew she would not be present as a Grandma. She even made a demo for her very- young- at- the -time girls on the basics of makeup application and a Mom's talk about periods and womanhood so her husband could play that segment for the girls when the time was right.
That would be a hard video to make and challenging letters to write ahead but what brave and beautiful gifts!
This gal also shared how she prepared a card for her husband to be opened on the one year anniversary of her death/or their next wedding anniversary--forget which, expressing her love and thankfulness for their happiness together. In it she also wrote that she didn't want him to be lonely and she wanted him to feel completely free if he ever wanted to re-marry. She said she put it in writing so he'd have her reassurance of how she felt about it to go back to if he wanted to.
For me these are rare glimpses into a very personal part of people's lives who knew they were near the end.
I too shed some tears through their courageous stories. I was glad that I watched them. I found the series thought provoking and sensitive. It made me think about my own life and eventual death. I pondered some changes I want to make about how I live the rest my life and loose ends I'll want to tie up here for the sake of my family before I head for Heaven. As far as I know, I'm doing terrific and am living like I'm going to be around for a long time but only God knows that timing. Cancer has a way of reminding me of the brevity and fragility of life.
Paula
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12-31-2012, 11:16 AM
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#5
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Senior Member
Join Date: Jul 2011
Posts: 954
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Re: "My Last Days"
My Last Days: Meet Ann
http://www.butdoctorihatepink.com/
This Last Days series is sensitvely portrayed and well done. This one is on one of our members here, CoolBreeze Ann and her beautiful family. I am posting it here with her permission.
Paula |
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01-01-2013, 06:03 AM
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#6
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Senior Member
Join Date: Jul 2011
Posts: 954
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Re: "My Last Days"
Dear Ann,
I am sure this series will be a blessing to many people. I want to say a big "THANK YOU" to wonderful you and your dear family for sharing your lives with us.
I wish you guys the very best.
((Hugs)),
Paula
P.S. I know you are ill and don't feel the greatest all the time and are going through a very difficult time (not trying to minimize that in the least) but I want you to know you sure do look really, really good and like someone very much alive with a zest for life! (No joke, you look healthier than a lot of people not fighting cancer). You are a very pretty lady with a gorgeous smile and a heap of love for your family You go, girl!
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01-01-2013, 04:17 PM
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#7
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Senior Member
Join Date: Dec 2009
Posts: 562
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Re: "My Last Days"
Thank you so much Paula! Thanks for sharing it too. The Soul Pancake crew were super nice. It was a bit scary opening up my life for people to see but they were very encouraging.
Yes, I don't really look very sick do I? I live on painkillers though. You'd have to compare to what I was like 3 years ago but I don't feel that healthy these days. Hopefully, I will get on the TDM1 trial (if it's still a trial) and that will change things.
__________________
 http://butdoctorihatepink.com
08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative
10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.
5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.
I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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01-01-2013, 04:54 PM
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#8
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Senior Member
Join Date: Mar 2012
Posts: 199
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Re: "My Last Days"
thanks for posting paula
Ann- I watched your video from your blog which i follow regularly. You are beautiful, inside and out. Thank you for allowing us in your home, and in your life, it takes a lot of courage to do so. I have read so many of your posts on this site and bco.org and have always enjoyed your perspective and humor. The video allowed me to see the real you...the person behind the writing. What a beautiful and loving family
Thanks again for sharing
__________________
diagnosed aug/11
right breast IDC 2.2 cm LVI
neoadjuvant fecx3, tax and her x3
surgery -pCR 0/2 nodes
25 rads
herceptin x18
tamox
prophy bi-msx with TE's oct 15/12
LD flap reconstruction (PM me if you want the details)
zoladex shots monthly until SOFT studies come out
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01-01-2013, 05:03 PM
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#9
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Senior Member
Join Date: Dec 2009
Posts: 562
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Re: "My Last Days"
Roz, thank you for the kind words. I was a bit worried about doing the video. The other two were very young men and I wasn't sure the YouTube generation could relate to a middle-aged woman, but seems like everybody has been positive about it.
I agree that my family is beautiful and loving. They are the light of my life and the best thing I've ever done.
__________________
http://butdoctorihatepink.com
08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative
10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.
5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.
I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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03-01-2013, 04:46 AM
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#10
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Senior Member
Join Date: Jul 2011
Posts: 954
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Re: "My Last Days"
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03-02-2013, 01:24 PM
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#11
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Senior Member
Join Date: Dec 2009
Posts: 562
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Re: "My Last Days"
It's awful when it's a child. I am not sure how the guys (the crew) handled that one, they are so sensitive.
__________________
http://butdoctorihatepink.com
08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative
10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.
5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.
I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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03-04-2013, 07:52 PM
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#12
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Senior Member
Join Date: Dec 2009
Posts: 562
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Re: "My Last Days"
There is a new one today, and she has breast cancer as well.
http://www.youtube.com/watch?v=kM_CV...IB7bfX&index=1
For some reason, I am the least popular one they've shown. The least views. I wonder why? I thought maybe it was my age but I don't think Juli is any younger than me.
Oh well, I am glad they are doing this series. It's nice to see the internet used this way.
__________________
http://butdoctorihatepink.com
08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative
10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.
5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.
I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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03-09-2013, 08:22 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: "My Last Days"
Phew...courage
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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