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Old 05-16-2010, 10:33 AM   #4
freyja
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Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
Re: Help with Neratinib

I did hear that the requirements just changed last Monday (I got in 3 days before that, but I'm pretty sure I'm on the placebo, anyway). I'm sorry about the let down. These trials mess with people's emotions and lives, but it's how the process works at this time, and hopefully someday there will be so many new things available because of these trials that we will be able to live our lives and put our energy into facing all of life's other challenges. Keep trying, keep asking questions. Things are changing all the time.
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"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.

"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)

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