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A Rainbow of Hope FINALLY!!!!
Just a quick update on my new reports...it has been since Mid May since the Avastin was stopped, and the pericardial window surgery. I have been on the Metronomic chemo since end of May..Cytoxan daily and Methotroxate 2x a day on Mondays and Tuesdays.
Just had scans and tumor markers done (CEA)
In May my CEA was 16 (normal is <3)
My CT's showed the mediastinal, hilar, axillary and nodes in my neck all enlarging, and wrapped around my pulmonary artery causing severe occlusion. Also, left lower lung lobe collapse and atelectysis in both lungs.
Today, all nodes have shrunk (shrinkage IS good!!!)
The pulmonary artery is barely occluded...some nodes are GONE, both lungs clear, and my CEA is 3.4, just a smidge over normal.....
I am feeling amazing....even got rid of the gray hair! Have been walking a mile a day with no problem, and spending as much time with my Mom as I can as she is now in Hospice at home.
There is always hope.....I will never see NED, and always need treatment, but hey, I am on cloud 9 right now...and i'll take this news and hold it for as long as I can!
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"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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