Serum HER2 Survey

[Joe]

"Judy Feder is a breast cancer patient who has been living with a Stage IV diagnosis since December, 2001. With mets to the lungs and liver, she has been heavily pre-treated with both chemotherapy and hormonal therapies. Last fall, facing significant progression in her liver, she asked her oncologist about the serum Her2 blood test (also known as Her2 ELISA). Her doctor tested her twice, and each time the results indicated she was Her+, even though multiple biopsies had returned Her2- results.

Based on this, Judy began Herceptin (with Navelbine) in late January. She has yet to be scanned, but physical examinations indicate a marked response, especially in the left lobe of her liver, which had been almost entirely replaced by tumor.



Her experience has motivated her to find out more about the serum Her2 test, and another blood test sometimes used to measure Her2 status, known as CTC (circulating tumor cell). The existing research is inconclusive, so she has started a grassroots effort to build a patient registry of people who may have been given these tests. She has asked us to provide a link the survey she created to build the registry: https://vovici.com/wsb.dll/s/955fg3d09c She would be grateful if everyone, regardless of their current Her2 status, would take the survey and become part of the registry. Judy will share results with us and, even more importantly, she hopes the results will provide additional insight into Her2 testing and the potential benefits of Her2-targeted therapies.

Judy's efforts are completely independent. She is not working with any companies or other organizations to do this. She just believes in patient power. If you have any questions, please feel free to e-mail Judy at jfeder@brodeur.com."

[Soccermom]

Joe,link doesnt work with the period at the end of the
Warmly,Marcia

[AbbyDawg]

Done! Thanks, Joe.

Research Survey for Metastasized Breast Cancer Patients

Schlesinger Associates, an International market research company in Dunwoody, GA, would like to invite you to participate in a Research Survey on Tuesday July 7, 2009
We are looking to speak with Metastasized Breast Cancer Patients. Who are over the age of 18, tested positive on HER2 test, and is currently on target therapy. The research study will be to complete a Reflective Journey. Many cancer patients have found it to be therapeutic. This is a paper journal, which contains about 7 to 9 exercises. You will be able to complete some exercises quite quickly while others will require more time for thought. Throughout the process, you will be asked to do such things as write your professional story, think back on memories and experiences, and even to use your imagination. Much of the content for your responses will come from your reflections.

Please be assured that this is no way related to sales, clinical trials or any product. Upon qualification, participation and completion of this study, we are pleased to give you an honorarium of $250 in appreciation of your time and insight.

Please call Renee at 770-658-1026 ext 215

Thank You,
Schlesinger Associates Atlanta

Schlesinger Associates has enacted a privacy policy in order to protect and safeguard personal information collected from Consumers, business individuals and entities, healthcare professionals and patients relating to health information. All personal information is kept confidential and only utilized for research purposes.

[Jackie07]

Joe and everyone,

That company's address, according to its website, is

Schlesinger Associates and Research House
The Palisades Building, Suite 950
5909 Peachtree Dunwoody Road
Atlanta, Georgia 30328

Phone: 770.396.8700 Fax: 770.396.8753

Vice President: Stephenie Gordon
Email: stephenie@schlesingerassociates.com

Facility Director: Erin Jewell
Email: erin@schlesingerassociates.com

I would suggest anyone who's interested in the survey use the contact information from the company's official website.

[Jackie07]

Thank you for your email! This is NOT a hoax. We are desperately in need
of Metastatic Breast Cancer patients for a research study. The monetary
incentive is just a token of how much we appreciate the time that would
be required for this research. This is a paragraph taken from the
clients regarding what exactly we are looking to do:

Should your profile fit, we would like to invite you to participate in
our research methodology known as Reflective JourneyTM. This form of
research is based on social science research techniques and is conducted
via an innovative and unique journal that goes beyond traditional focus
groups, interviews, and surveys.

This is a paper journal, which will be couriered to you and in
it contains about 7 to 9 exercises. You will be able to complete some
exercises quite quickly while others will require more time for thought.
Throughout the process, you will be asked to do such things as write
your professional story, think back on memories and experiences, and
even to use your imagination. Much of the content for your responses
will come from your reflections. Upon completing your Reflective
JourneyTM, it will need to be returned to us.

Many participants in similar studies have commented that this
kind of research is enjoyable, plus it allowed them to actually learn
about themselves. They have said that it has helped them gain a deeper
understanding of their motivations plus in many instances, people found
it therapeutic.

We are doing this research across the country, however we need to start
sending the journals out today, possibly being permitted to go into
tomorrow. Any help you could provide us would be greatly appreciated!

Thank you so much for taking the time to reach out to us

Sincerely,

Rachel Campbell
Senior Project Director