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Old 11-01-2011, 11:34 AM   #1
ElaineM
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Wink New Campfire

Hi,
Our old campfire was closed by Post due to spammers.
http://her2support.org/vbulletin/showthread.php?t=51914
This is unfortunate, because we lost our place to relax by the campfire or hang out and spend time with each other. Link to old campfire.
http://her2support.org/vbulletin/showthread.php?t=37483
Since the old campfire was a popular place over the years Bill and I decided we need a new campfire.
I found this nice new spot in a beautiful forest near a lovely lake for everyone (except spammers) to enjoy.
I am starting to move the smaller things today and hopefully Bill will follow with the bigger things, so we will be just as comfortable as we were before.
Please come and help me build the fire later today if you have time.
Feel free to drop by to relax by the Campfire if you need time out from your busy schedule or to spend time with friends there. It is open 24 hours a day 7 days a week.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 11-01-2011, 11:47 AM   #2
StephN
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Re: New Campfire

Thanks Elaine & Bill! Great idea. The old spot was getting a little trampled anyway.

I have some dry apple wood I can bring to add to the woodpile.

So, anyone who is feeling a need for sympthetic company, needs cheering up or has a good joke or story to share, follow the HER2 signs down the path to the campfire site.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 11-01-2011, 09:03 PM   #3
ElaineM
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Wink Re: New Campfire

Thanks for the applewood Steph. It will help keep the fire going. Also thanks for making the her2 sign, so our members can find the new campfire.
I am leaving a thermos of green tea and a few snacks for those who spend some time warming themselves by the campfire tonight.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 11-05-2011, 11:23 AM   #4
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Wink Re: New Campfire

I thought I would bring my breakfast down to the campfire and relax by the fire on a lazy Saturday morning. Anybody want to join me for some cereal, fruit and coffee?
You guys are welcome to bring the scrabble board over here and play by the fire where it is nice and cozy.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.

Last edited by ElaineM; 11-05-2011 at 11:44 AM.. Reason: addition
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Old 11-06-2011, 01:51 PM   #5
chrisy
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Re: New Campfire

I brought some pinecones and pistachios. Both are fun to toss in the fire because they burn really pretty. Of course you eat the pistachios first then just toss in the shell.

by the way does anyone know what time it is? All my clocks say different things
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Old 11-06-2011, 02:29 PM   #6
StephN
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Re: New Campfire

I can bring some pinecones too! Good idea, Chrisy. Better than tossing them in our yard waste bin.

I resent most of our clocks before bed last night, so we would not sleep in so much like last year when I forgot!

Sorry I missed breakfast yesterday, Elaine. Had too much garden cleanup to do while weather is holding.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 11-15-2011, 10:37 AM   #7
ElaineM
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Wink Re: New Campfire

I brought my breakfast down here to sit by the fire and warm up. I brought some Portuguese sweet bread to share. It is very popular in Hawaii.
I am glad to be back online, but I have alot to catch up with. I had problems with the internet server for almost a week. Eventually I will be changing internet servers, but being online makes it easier to look around for a new provider.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 11-23-2011, 10:30 PM   #8
ElaineM
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Wink Re: New Campfire

I just dropped by to sit quietly the night before Thanksgiving and think about my blessings.
I will leave some homemade cranberry sauce in the cooler and some warm squash and pumpkin soup by the fire for whoever drops by. Sorry, no turkey. I am vegetarian. Smile.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 11-30-2011, 10:37 AM   #9
ElaineM
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Wink Re: New Campfire



Bill's birthday cake. Enjoy
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 12-15-2011, 05:07 PM   #10
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Re: New Campfire

Wow, what a nice new campfire. You gals have that thing raging. It feels really good, warmin' me bones just right. Elaine, thanks for that awesome birthday cake. I know how much willpower it took you lasses not to nip into it while I was away, but here, let's slice that thing up and pass some around. I love the cracklin' of a good fire and the spirited chatter of good company around it. Here's to all of you!
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Old 12-16-2011, 11:50 AM   #11
ElaineM
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Wink Re: New Campfire

Ah that cake was delicious. Good to have you around the campfire again Bill, especially since you built our first one.
I am leaving some "kicked" up oatmeal and coffee on the fire for all to enjoy around the campfire this morning. I have been sitting here relaxing by the fire and eating some oatmeal and having my morning coffee.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 12-16-2011, 02:52 PM   #12
Jackie07
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Re: New Campfire

Thanks, Bill. Here's a belated "Happy Birthday!"

[Special thanks to Elaine who brought the cake. Glad you've kept it fresh in the freezer! ]
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Old 12-17-2011, 05:40 AM   #13
karen z
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Re: New Campfire

Elaine,
You were not kidding about the "kicked up" oatmeal. Very good !
And your coffee was perfect.
Many thanks.
Karen
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Old 12-17-2011, 12:13 PM   #14
StephN
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Wink Re: New Campfire

I will try to come by for a break between getting cards out and the last few gift decisions ... I have some delicious fresh caramels from France to share. The soft kind, easier on your teeth!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 12-18-2011, 07:11 AM   #15
Paula O
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Re: New Campfire

Here's a cartoon to pass around to you guys at the camp fire.
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Old 12-18-2011, 10:58 AM   #16
ElaineM
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Wink Re: New Campfire

Cute !!
I can relate. I have two broken toes at the moment.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 12-26-2011, 03:43 PM   #17
ElaineM
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Wink Re: New Campfire

I just threw some more logs onto the fire to keep you guys warm if you want to relax by the fire for some down time.
I am also leaving a thermos of hot chocolate for whoever wants to keep even warmer.

__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 12-26-2011, 05:46 PM   #18
karen z
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Re: New Campfire

Thanks Elaine. I could really use warmth and hot chocolate right now. It is cold in Atlanta!
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Old 01-17-2012, 07:25 PM   #19
Bill
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Re: New Campfire

Hi Gang! Thought I'd drop by to say hello and warm up a little bit. Here, let me toss a stick or two onto the fire.....you know....those sparks... shootin' up there towards that quarter moon remind me of the time when I was camping out in Arizona.... and spotted that shapeshifter just at the edge of our clearing. Have I told that story before? Maybe we should sit around the fire here and swap stories. I would tell it now, but I don't want to tell it if I've already told it. Here, let me stick my little tinfoil packet of almonds and walnuts next to the coals. I'm gonna lay back a bit and let my mind wander off and contemplate God, Man, our places in time and space, and the nature of all things, both real and imagined. If I doze off, someone keep an eye on those nuts and help yourselves when they're nice and crunchy.
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Old 01-17-2012, 08:17 PM   #20
ElaineM
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Wink Re: New Campfire

I ate some of the almonds and walnuts when you were napping, but I did leave some macadamia nuts for you to snack when you wake up.
Good idea about sitting around the campfire sharing stories. Don't worry about telling the same stories. I am sure there will be folks who haven't heard them yet. We all have stories to tell since we all come from different backgrounds and have had different life experiences.
We need to have a weekend or at least a one day camp out. I will bring the marshmallows, coffee and tea for sitting around the campfire and the fixings for a delicious breakfast if others can bring the lunch and dinner fixings.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.

Last edited by ElaineM; 01-17-2012 at 08:18 PM.. Reason: correction
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