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09-29-2009, 02:43 PM
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#1
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Guest
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Marie needs some help
Hi, Marie has had to put Ed in the hospital today, she has no car, no transportation, etc. to see him.
Is there anyone in RI or nearby that could help her?
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09-29-2009, 02:57 PM
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#2
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Member
Join Date: Jun 2009
Posts: 7
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Re: Marie needs some help
Hi, newbie from RI here, been lurking for sometime. Please Pm me with more info on what Marie needs for transpo. I am in RI, but I have good days and bad~ happy to help when I can
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09-29-2009, 03:00 PM
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#3
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Marie needs some help
Does the hospital have a room for relatives? When my grandmother was dying, we could sleep near her.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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09-29-2009, 03:05 PM
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#4
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Guest
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Re: Marie needs some help
i am sure that once she gets to hospital she won't leave, I don't think he has a lot of time left, or that is what hospice was telling her.
Momcat - I have sent you a private message with Marie's contact info.
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09-29-2009, 03:13 PM
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#5
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Marie needs some help
I hope someone here can help her 
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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09-29-2009, 04:22 PM
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#6
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Senior Member
Join Date: Oct 2005
Posts: 823
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Re: Marie needs some help
On No, I so wish I was closer to be able to help her. I hope she finds a way.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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09-29-2009, 06:06 PM
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#7
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Marie needs some help
Very sorry to hear this development. I know times have been tough for our dears.
Are there taxi or van services that the Hospice people can help her with?? I know here we have volunteers who will drive people who don't have transportation. Hope such services will surface.
I pray for the assistance of loving presences to guide and calm Marie and Ed during these coming days.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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09-29-2009, 07:47 PM
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#8
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Re: Marie needs some help
Is this something the American Cancer society could help with? Maybe they just help with transportation for the cancer patient.
I sure wish I could help.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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09-29-2009, 08:40 PM
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#9
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Marie needs some help
The hospice people may have suggestions. Ask the American Cancer Society for the names and contact info for nearby taxi companies that might be able to offer her a discount. Go to Cancercare.org or call them at
1-800-813-4673. They might have suggestions. Can someone at their doctor's office make suggestions?
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09-29-2009, 10:56 PM
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#10
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Senior Member
Join Date: May 2006
Posts: 144
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Re: Marie needs some help
I'm in Mass. and RI is an hour away. PM me if I can help.
Anna
__________________
- Anna
Stage I - DX 9/2005 ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis - start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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09-29-2009, 11:03 PM
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#11
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Guest
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Re: Marie needs some help
I know a couple of you spoke with Marie today and offered to help in case she needs rides, etc. I am glad she has some backup, this is taking its toll - she was meeting with social worker tonite at home so maybe they can help also.
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09-30-2009, 05:33 AM
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#12
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Member
Join Date: Jun 2009
Posts: 7
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Re: Marie needs some help
I spoke with Marie yesterday and told her I am available anytime for any reason. I am 1/2 hour away. I will continue to stay in touch with her ( Isn't it funny how asking for help is so difficult?). Bless you all for your concern for your friend~ know that I will try to help, for her and for you.
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09-30-2009, 07:15 AM
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#13
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Guest
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Re: Marie needs some help
Oh dear God, I'm so sorry this is happening. Ed's time is coming to be with his maker.
Maire I'm in Mass and will be happy to help.
Ann I see you in Mass as well, where are you located? I'm in Lowell
Randi
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09-30-2009, 08:03 AM
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#14
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Senior Member
Join Date: May 2006
Posts: 144
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Re: Marie needs some help
Hi Randi,
I'm in the Boston area.
__________________
- Anna
Stage I - DX 9/2005 ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis - start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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09-30-2009, 10:17 AM
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#15
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Senior Member
Join Date: Aug 2006
Location: Franklin, MA
Posts: 131
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Re: Marie needs some help
I spoke with her as well...she was all set for today but has my number if she needs help another day. I'm about 45 minutes away from her.
Colleen
__________________
Diagnosed 10-03-2005 (34 wks pregnant, 38 yrs old)
Lumpectomy Nov-2005. 10/18 Lymph Nodes impacted
Mets to liver, spine & femurs (thus being stage IV right from the get-go)
ER-, PR-, HER2+
Taxol/Herceptin/Zometa started Dec-2005. 11 cycles of Taxol.
Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans).
Navelbine (3 wks on/1 wk off) as of Oct--2006 & continued Herceptin (every 3 wks) & Zometa (every 6 wks)
Jan-2007: PET/CT Scan - Stable. Continued Nav. through March-2007, then Herc./Zom. only after that.
June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007.
Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.
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09-30-2009, 10:41 AM
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#16
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Re: Marie needs some help
Cannot imagine the tears that fall reading a thread like this or getting assorted phone calls from all over. I cannot express and you think I could by now. The love and support I have recieved here is a unique bond, it has been my life's work....because of you. I will be working when my benefits run out and before the extended benefits. I have to wonder if this is really supposed to be...I feel my life was supposed to be this, I am still centered and focused somehow. Thank you all for walking the walk with us and sorry that you must join us on this part. Please do not let this all discourage anyone from anything. There is no regrets, we turned all stones and I grab great comfort from this...as can you knowing that.
I will set up a seperate updated post about his condition. It will still inspire you. See you soon and giant hugs...Marie
I still cannot believe this is happening...can you believe that?? Unreal.
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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09-30-2009, 10:43 AM
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#17
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Guest
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Re: Marie needs some help
Anna,
I would love to go to Ed's mass, if it is open to us, but I do not drive long distance very good. Would you be going? If so I would love to hitch a ride, I would be happy to pay towards gas money. I just feel like I need to be there for her. I've talked to her off line and even spoken to her on the phone. She has been an absolute Angel through this.
Thanks
Randi
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09-30-2009, 02:23 PM
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#18
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Senior Member
Join Date: Apr 2008
Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
Posts: 354
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Re: Marie needs some help
Awww Marie :'(
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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09-30-2009, 04:40 PM
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#19
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Re: Marie needs some help
Marie
I love you and Ed without ever even meeting in person.
My prayers to you both my dear friend.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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09-30-2009, 06:29 PM
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#20
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: Marie needs some help
Love to you Marie and Ed....Ceesun
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