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Diet and Nutrition By popular demand our nutritional message board. This board will be monitored by a Registered RD who is certified in oncology by the American Dietetic Association

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Old 03-26-2014, 07:40 AM   #1
Freakzilla
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Supplement Help

Hi,

My Girlfriend was diagnosed last year. Grade 3, Stage 3B, ER+. PR-, HER2+ at 31. 7 Positive Nodes of 17. She had FEC-T 6, Masectomy, and Radiotherapy. Also another 9 lots of Herceptin to go.

Will be starting Tamoxifen in two weeks time. Also probably Ovary suppression as well.

I've been looking at supplements which will help. So far I've got Vitamin D3 5000iu pd. I've got some liquid calcium 1200mg, but in the ingredients it lists soy lecithin. Is this OK? I thought Soy was a big no for any ER+ ladies.

I've also looked to get some Glucosamine HCI 1500mg with Chondroitin Sulphate 1200mg, but Shellfish is listed as an ingredient for the Glucosamine. I also thought this was a big no no.

Any help with this would be great.

Thanks
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Old 03-26-2014, 07:50 AM   #2
Freakzilla
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Re: Supplement Help

The Glucosamine is for the aches and pains of Herceptin.
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Old 03-27-2014, 04:14 AM   #3
Freakzilla
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Re: Supplement Help

I've also noticed the vit d3 has soy in it. Is this ok?
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Old 03-27-2014, 01:19 PM   #4
donocco
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Re: Supplement Help

Soy contains Genistein which is a weak estrogen. Genistein seems to be somewhat preventative of breast cancer because it occupies the estrogen receptor and prevents the stronger estrogen (estradiol) from linking onto the Estrogen receptor. Once you actually have breast cancer the effect of Genistein is not well known. In rats it seems to fuel ER positive breast cancers. Call the supplement factory and see how much soy is in each tablet and how much Genistein. The amount may be very small. Of course to put your minds more at ease it might be easier to avoid the soy made products altogether.

Paul
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Old 03-27-2014, 02:17 PM   #5
Freakzilla
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Re: Supplement Help

Thanks,

I managed to get some without Soy in.

I couldn't find any Glucosamine without shellfish though, as it is predominately made from the shells of shellfish.
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Old 03-29-2014, 02:20 PM   #6
LeahM
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Re: Supplement Help

Hi,

I can't help with the soy and shellfish issues but I wanted to chime in on the Vit. D and Calcium. After all my treatment was done (except Tamoxifen) I had my Vit. D levels drawn and was hugely deficient. I now take a prescription strength Vit. D and will retest my levels in 9 weeks.

As for the Calcium I was informed that our bodies can only metabolize 600mg at a time (I was taking 1500mg at once) so now I break it up and take it twice a day.

Best
Leah
__________________
39 year old wife, mother of one and nurse.
April 20, 2012: Dx Invasive Ductal Carcinoma
April 25, 2012: ER+(5%), PR-, HER2+++
May 10, 2012: BRCA 1,2 Negative
May 23, 2012: MUGA Scan EF 70%
May 31, 2012: B/L Mastectomy. 2/2 nodes removed and CLEAR!! Power Port placed. 2 Drains. 2 Expanders placed
June 5, 2012: Drains OUT! Ahhhh..
June 12, 2012: Final Pathology Report, .8x.3cm tumor. Micromets to 1 node .35mm under cytokeratin staining. Stage 2A. Onc says "you are lucky to have found this early"
July 10, 2012: Started 6 rounds of TCH with weekly H
Sept 5, 2012: MUGA 65%
Sept 20, 2012: CAT scan of brain clear!
Oct 23, 2012: LAST TC! AMEN! Continue Herceptin every three weeks until July 2013.
Nov 19, 2012: Port out!
Dec 5, 2012: Started radiation
Dec. 10, 2012: MUGA 65%
Dec. 13, 2012: Turned 40. BEST BIRTHDAY EVER!
Jan 23, 2013: Last radiation. Told I am NED. Continue Herceptin every three weeks till July 2013.
Jan 29, 2013: Begin 5 years of Tamoxifen.
Feb 28, 2013: CT Scan with Contrast of lungs. 5mm and 4mm nodules of unknown origin. Rescan in 3 months.
Mar 6, 2013: EF 60%
May 8, 2013: Exanders out, implants implanted...abd. lipo and fat moved up. Girls are looking good!
June 3, 2013: CT Scan with Contrast of lungs. Previous nodules gone. New nodules (2mm and 3mm) found. Rescan in 3 months. So sorry I opened this can of worms...
June 11, 2013: EF 60%
June 25, 2013: Last Herceptin. wow...
Aug 20, 2013: Tumor markers within normal limits. Xray to sore left ribs shows no disease or fractures.
Sept 9, 2013: CT of lungs shows no disease. Closing this can of worms and moving on.
Nov 20, 2013: Tumor markers within normal limits. Severe Vit D deficiency, started on prescription Vit. D. Blaming chemo for this.
Feb 2014: Tumor markers within normal limits.
May 2014: Tumor markers within normal limits. Graduated to twice yearly onc appts.
Oct 2014: Tumor markers within normal limits.
May 2015: Tumor markers WNL. Bone density scan fine. Bone scan and xray of ribs shows "something" 4th right rib. Could be healed fracture but if it is healed why does it hurt?
Nov 2015: Tumor markers WNL. Follow up bone scan clear.
Feb 2016: Syncope! WTF? Dizzy too. Brain scan clear, ECHO EF 60%, Halter Monitor shows heart is fine. Viral? I will never know.
June 2016: Tumor markers WNL.
Oct 2016: Stabbing pain right eye. Long story short, trigeminal neuralgia.
Nov 2016 Brain MRI clear.
Jan 2017: Tumor markers WNL, still getting weird pain right rib area, and sometimes right upper chest. Xray x2, Bone Scan, Breast MRI all clear. Scar tissue? Rads. I may never know.
www.onmywaytosurvivorhood.blogspot.com
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www.facebook.com/thechemobag
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