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Old 08-31-2011, 08:44 AM   #1
krisvell
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Location: Kensington, CT
Posts: 394
Re: Gamma Knife A Success but more brain mets

Hi Courtney;
Dr. Krop mentioned the Neratinib trial should start in 4 -6 weeks. It might be sooner than you think. Told me that I had to have 1cm of tumor to track to qualify.
Kris....
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06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found


Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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Old 08-31-2011, 12:48 PM   #2
MJo
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Location: Wilmington, Del.
Posts: 1,126
Re: Gamma Knife A Success but more brain mets

Wow, you DO have options to consider. I was just reading about the promising early clinical trials for a cancer-fighting virus. They used it on 23 people who had "run out of options" -- lung, ovarian, colorectal, etc. But not breast cancer. It sounds like BC has a lot of treatments in the pipeline. May the beautiful garden that is your brain become NED. Stage IV CAN beome NED
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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