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Old 02-20-2010, 12:58 PM   #221
juanita
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Re: Things you didn't know about me!

she's here! jadyn marie was born yesterday evening at 6:30. she is 8 lb 4 oz and 21 in. everybody is doing great! she is a beautiful little girl with blue eyes and a HEADFULL of jet black hair. i gotta wait for my husband to get home to download the pictures on the computer but for those on facebook i can send those from my phone and there are a bunch on there already.
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dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,

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Old 09-29-2010, 07:53 PM   #222
Laurel
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Re: Things you didn't know about me!

I happened upon this thread while searching for information and recalled that it was a good one and fun. Thought I'd resurrect it with these little known facts:

Warren Zevon once gave me the mic to sing into at a concert. Some chick behind me was jealous and set my hair on fire!

I very nearly drown at age four, but was rescued from the bottom of the lake by my teenage cousin who saw me go down for the last time.

I love to drink in Chownings Tavern in Colonial Williamsburg.

My all time favorite film is "Harvey" with Jimmy Stewart. My second favorite is "The Deer Hunter" with Robert DeNiro.

I used to party with some of the guys from Anthrax. They are all challenged in the height department....
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 09-30-2010, 11:39 AM   #223
StephN
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Re: Things you didn't know about me!

Hey, Laurel -

I almost drowned, but was rescued, as well. Age 2 I slipped down the bank of an irrigation ditch behind our house (after clambering over a wire fence).

A neighbor lady saw me (heard me) and leaped to my rescue. I got a rocking horse as an incentive to stay in the house after that!

I was at a small party with the Ramones in Vancouver, B.C. in 1977 or 78.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 09-30-2010, 06:55 PM   #224
Laurel
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Re: Things you didn't know about me!

Steph,

I love the Ramones! You lucky girl, you! I saw them in Hammerheads on Long Island in the eighties. Was it Joey who recently died of cancer?

Ok, gotta add another tid bit. My first love was a wonderful French Canadian boy named Andre'. My family would travel to this little town named Senneterre in Quebec. From there we would travel by train or on a dirt logging road back to the Fishing Camp Andre's family ran. He became a bush pilot and died in a tragic plane crash at the age of 21. It was so sad because he was one of those guys who was so full of life.
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 10-05-2010, 11:44 PM   #225
Jackie07
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Re: Things you didn't know about me!

A coincidence you just mentioned about first love...

One of my Junior High school buddies (I was a tomboy, so all of them were 'guys') went to the military academy after graduation. I had corresponded with him through high school, but decided I was going to enjoy my college years - thinking that if he really cared, he would take actions. And if it were meant to be, a separation of 4 years would not change anything [I had read too many 'traditional' Chinese romances that emphasize on the 'eternal' relationship - usually a 'platonic' one.]

He did pay me a surprise visit at the open house of my college with a couple of other 'buddies' - which wasn't easy as he was in the Naval Academy at the time. So I played basketball, sang in the choirs, did my volunteer work...Then boom, right before his appointment, we were told that he's going to get married - to a female officer he had met in a joint Forces exercise. Bunch of us Junior High classmates went to the wedding and the old 'Gang of four' actually stayed overnight at his new apartment (a traditional Chinses prank - friends/relatives staying overnight to hold the groom/bride 'hostage'. [Usually just the groom, so the exhausted bride can get a good night sleep]) I did my usual thing - reading Chinese Readers Digest while others playing Mahjong.

He and another 'gang' called me earlier this year after chatting online for a while that night. I was a little bit surprised but was happy to catch up with them. He sent a picture of his family via the Internet. By summer I had received several pictures from another buddy who had also attended the class reunion in spring. 7 of my classmates made posters to wish me well and 'he' was one of them in the 'formation'.

I was so shocked to learn last night that he had been divorced from his wife of more than 28 years not long after our conversation and is now dating a widowed classmate he had met at the Reunion. Knowing both of them well enough to realize how painful it must have been for him to have had a divorce and how difficult it must have been for her to have become a widow at 50, I just felt so sad about what each of them had been through while at the same time so happy for them to have found each other.
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 10-06-2010 at 07:49 PM..
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Old 10-06-2010, 07:15 PM   #226
Laurel
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Re: Things you didn't know about me!

I reconnected with my High School sweetheart with whom I spent 11 years after 17 years apart. Now we speak regularly. We marvel at how we have become old farts!
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 10-06-2010, 07:55 PM   #227
tfabre
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Re: Things you didn't know about me!

I would be "skinny" if I were 6' tall, but unfortunately, I am only 5'3". I once helped my neighbor burn a wooden ladder that had floated to his pier (while we were enjoying a few beers), only to discover later that it was the ladder from MY PIER! LOL!
Every year, right after Thanksgiving, I watch "How The Grinch Stole Christmas (old and new versions), "Christmas Vacation", "A Christmas Story", and "It's A Wonderful Life", while decorating my fresh cut tree....I can't wait!
__________________
Toni

Found lump...Oh, crap!
Dx 4/29/10
Invasive Poorly Differentiated Ductal Carcinoma. BRCA 1&2 no mutations(although 2 cousins also are HER2+)HMMM....
Stage IIB, G3
ER/PR -, HER2+++
5/11/10 Lumpectomy/Axillary node dissection/Mediport placement
Tumor 3.5cm, 1/15 nodes + Both Sentinel nodes negative!
6/24/10 - Started TCH.
10/14/10 - Finished chemo...yea!!!!!
12/27/10 - PET scan and MRI-NED!!!!!
03/09/11 - Bilateral Mastectomy and reconstruction (DIEP Flap)
03/16/11 - NED! Path report negative!
6/9/11 - Revision of both breasts, and port removed. Two lumps removed...both benign!
6/23/09 - LAST HERCEPTIN!!! Wohooooo!


My son Tim and his wife Nicole just had their first born...a son, Brayden...my first Grandchild! My daughter Hanna is working her way through college, and I am so proud! God has blessed me.

Update...as of 10/2013...still NED, and my son and daughter-in-law just had identical twin girls!!! They have blessed me with 3 beautiful grandchildren in 27 months!! Haha!
My beautiful daughter, Hanna, is still working toward her degree and working full-time.

God is so good:)
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Old 10-06-2010, 08:18 PM   #228
Colleens_Husband
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Re: Things you didn't know about me!

I haven't posted for a while because I have been suffering from an extremely rare disease called vitamin B-12 polyneuropathy. It is so rare that the cheap-bunned HMO flew in specialist from San Diego and Seattle. It turns out I am very allergic to vitamin B-12 and if I don't get it, the nerves in my body start dying. It is official, I am now allergic to the whole planet, everything on the planet, and myself as well. So I have been taking immuno-suppresants and then getting vitamin injections directly into my liver. And I used to think taking Flinstone Chewables was bad.

And the worst part of it all is that all the people with real diseases that have cool names think they can kick my butt because is there anything that sounds more sissy than vitamin B-12 polyneuropathy? No, I didn't think so. At least it isn't cancer. I need to thank God for that tender mercy.
__________________
This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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Old 10-06-2010, 08:23 PM   #229
tfabre
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Re: Things you didn't know about me!

Wow! That IS rare, but hang in there!
__________________
Toni

Found lump...Oh, crap!
Dx 4/29/10
Invasive Poorly Differentiated Ductal Carcinoma. BRCA 1&2 no mutations(although 2 cousins also are HER2+)HMMM....
Stage IIB, G3
ER/PR -, HER2+++
5/11/10 Lumpectomy/Axillary node dissection/Mediport placement
Tumor 3.5cm, 1/15 nodes + Both Sentinel nodes negative!
6/24/10 - Started TCH.
10/14/10 - Finished chemo...yea!!!!!
12/27/10 - PET scan and MRI-NED!!!!!
03/09/11 - Bilateral Mastectomy and reconstruction (DIEP Flap)
03/16/11 - NED! Path report negative!
6/9/11 - Revision of both breasts, and port removed. Two lumps removed...both benign!
6/23/09 - LAST HERCEPTIN!!! Wohooooo!


My son Tim and his wife Nicole just had their first born...a son, Brayden...my first Grandchild! My daughter Hanna is working her way through college, and I am so proud! God has blessed me.

Update...as of 10/2013...still NED, and my son and daughter-in-law just had identical twin girls!!! They have blessed me with 3 beautiful grandchildren in 27 months!! Haha!
My beautiful daughter, Hanna, is still working toward her degree and working full-time.

God is so good:)
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Old 10-08-2010, 08:43 PM   #230
Laurel
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Re: Things you didn't know about me!

Sheesh, Lee, that sounds pretty doggone awful to me! At least you aren't allergic to Colleen! I am just a bit ditsy tonight. Are you allergic to B12, but yet require it desperately for your nerve's survival? The question is then how do you take the B12, by the direct injection into your liver? That sounds pretty grizzly to me! Will this be a lifelong necessity?

You can be "one rare bird, too."
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 10-08-2010, 09:45 PM   #231
Jackie07
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Re: Things you didn't know about me!

Ouch! ['...injection directively into your liver'?] Below is the link from Merck:

http://www.merck.com/mmhe/sec06/ch095/ch095h.html

Looks like it is a complex disease only an intellegent person can acquire and understand... [not sure if a smiley is appropriate, so I am not going to put it here.] Hope you get better soon.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 10-12-2010, 09:19 PM   #232
DiDi70
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Re: Things you didn't know about me!

I was a member of a medicinal plant expedition in Nepal in 2001. My team catalogued plants that were used for medicine by healers (not many left there) and then presented our report to the King of Nepal in Kathmandu. He declared many of the plants endangered or gave them special status as the poor in Nepal can't afford things such as antibiotics, so they would have to rely on medicinal plants for health. A few days after our visit, he was shot dead by his son, the Crown Prince.
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Old 10-13-2010, 09:54 AM   #233
Colleens_Husband
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Re: Things you didn't know about me!

Laurel:

You are correct. My immune system is attacking vitamin B-12 in my blood serum and if I don't get vitamin B-12 I will lose all feeling and lose all muscle control because nerves will start dying. I am taking IVIG which is immuno-globulin taken from tens of thousands of people which shuts off the immune system long enough to absorb some vitamin B-12. IVIG costs about $3,500 a dose I am taking it every week. Hopefully the good doctors can find something else that works because it feels like I am losing this battle very slowly. Oh well, if they can at least slow thing down until they come up with a better way, then that will help. One doctor wants to try really small doses of vitamin B-12 in the hopes of sneaking under the immune systems radar. At this point, I am willing to try most anything.
__________________
This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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Old 10-13-2010, 07:26 PM   #234
Laurel
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Re: Things you didn't know about me!

Man, none of that sounds good at all! I will be praying in earnest for a new easier and more effective method to slide that B12 beneath your immune system. Is the nerve damage mostly in your hands and feet at present or is it more involved?

Thank you, Jackie, for the Merck link. It was very helpful in enlightening me on the polyneuropathy.

DiDi70 very cool story about your expedition to Nepal. Wow! To have been Kathmandu!
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 10-18-2010, 06:03 PM   #235
Bill
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Re: Things you didn't know about me!

Lee, I'm really sorry to hear about your condition. I admire your courage, though. I can see that in spite of everything, you haven't lost your sense of humour. Hang in there, my friend.
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Old 10-19-2010, 06:56 AM   #236
PinkGirl
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Re: Things you didn't know about me!

Geez Lee ... that's a bummer for sure.

When I was a kid I drank some chlorox bleach.
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 10-22-2010, 12:27 PM   #237
DiDi70
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Re: Things you didn't know about me!

I fell out of a tall tree the day before my First Communion so I had a big black eye and 3 big black stitches sticking out from under my white veil....
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Old 10-24-2010, 09:09 PM   #238
tfabre
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Re: Things you didn't know about me!

I fell out of a tree after sneaking a few swigs of my friend's dad's moonshine, when I was 13.....I had a hard time explaining that to my parents!
__________________
Toni

Found lump...Oh, crap!
Dx 4/29/10
Invasive Poorly Differentiated Ductal Carcinoma. BRCA 1&2 no mutations(although 2 cousins also are HER2+)HMMM....
Stage IIB, G3
ER/PR -, HER2+++
5/11/10 Lumpectomy/Axillary node dissection/Mediport placement
Tumor 3.5cm, 1/15 nodes + Both Sentinel nodes negative!
6/24/10 - Started TCH.
10/14/10 - Finished chemo...yea!!!!!
12/27/10 - PET scan and MRI-NED!!!!!
03/09/11 - Bilateral Mastectomy and reconstruction (DIEP Flap)
03/16/11 - NED! Path report negative!
6/9/11 - Revision of both breasts, and port removed. Two lumps removed...both benign!
6/23/09 - LAST HERCEPTIN!!! Wohooooo!


My son Tim and his wife Nicole just had their first born...a son, Brayden...my first Grandchild! My daughter Hanna is working her way through college, and I am so proud! God has blessed me.

Update...as of 10/2013...still NED, and my son and daughter-in-law just had identical twin girls!!! They have blessed me with 3 beautiful grandchildren in 27 months!! Haha!
My beautiful daughter, Hanna, is still working toward her degree and working full-time.

God is so good:)
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Old 10-24-2010, 09:42 PM   #239
StephN
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Re: Things you didn't know about me!

Well LEE!
Was it REALLY necessary to try to outdo Colleen's cancer treatments with some cockeyed rare disease of your own??

(Tapping my foot ...)

Seriously, if you have not just made all that up, I have a pot full of pity for you. Keep us posted.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 10-24-2010, 10:02 PM   #240
Jackie07
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Re: Things you didn't know about me!

A tree limb broke while my 3rd Brother was swinging on it . He scraped his knees and cut one of his ears. He's got one big earlobe (a good sign according to the Chinese Fortunetellers) since he was 8 because of the stitches.

I fell to the ground off a small ladder when I was only 4 or 5 while playing in a neighbor's yard. The lowest rung of the wooden ladder leaning on the wall was 'rotten' and broke instantly when I stepped on it. I was taken to our Army village clinic and my Mother had to put the antiseptic powder on the outer corner of my left eye sevral times a day for several days.

When I wrote about the exprience for my composition class several years later, my teacher (5th grade?) asked to see the tiny scar by my eye to validate my story.

Another time I got drunk by drinking a couple of shots of the sweet rice wine in the house (did my Father make it? usually it's purchased from a travelling vendor for making the sweet rice wine soup.) I fell asleep ('passed out'?) for several hours - I must be only about 8 or 9 years old at the time.
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NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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Last edited by Jackie07; 10-24-2010 at 10:46 PM..
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