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I went through 4 oncs already. Though I have moved a few times! The highlights of bad treatment being:
1. Didn't get the promised phone call with my biopsy results - they faxed me my results and left me to look up the meaning on the interenet.
2. Went into surgery with a stage 0 small incision promise. Didn't find out that my incision was much larger till I removed the bandage at home.
3. Had a fever and felt ill during my Herceptin treatment. Turned out to be a staph infection in my port. When I called the head nurse about my symptoms she responded "What do you do take your temperature all the time?" and "why don't you just find a freind to talk to - your just emotionally upset, that can cause a fever you know." Yeeeeesh what a nightmare some of this has been. Though there have been some wonderful professionals also. Meet my new Onc in September, and praying for a good person.
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Kim
Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes
BRCA 2 positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara
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