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07-06-2009, 08:00 AM
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#21
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Senior Member
Join Date: Mar 2006
Posts: 306
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Great news!
Brenda!
I missed the whole prior/ness, too. Congrats though, for sure  That's a LOT of rad beams for that little bug. I'm positive he's in bug hell, lol
xoxopatty |
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07-06-2009, 08:13 AM
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#22
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Senior Member
Join Date: Mar 2006
Posts: 306
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WIERD most definitely!!
Flori - WOW! First, I can't think of anyone better "qualified" to be interviewed with this specific focus the intent!
Second: It is one of those cases of reality following thought. Or whatever the right saying is... Comes out as just very WIERD!! - at first. Probably when it first happens to you, or so close to 'home' for others...
Go get 'em, dear. You know, because of your history with this crappola and you being YOU, I thought right after reading your post: "I'll bet someone recommended you when they went in asking." I still tend to think that!
Oh man, I sure wish-hope that I'll get to see it... I do know it will be awesome, Flori.
Lots of little hugs along the way, and just be you as you are, no nerves or second thoughts.
xoxopattyz
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07-10-2009, 12:56 PM
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#23
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Brenda,
I agree with the others. You are truly a BC warrior woman. Glad your treatment is over.
Amelia
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07-10-2009, 01:24 PM
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#24
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Two of my absolutely all time favs...
  Hutchy! You always amaze me, then I always why?! Ever bright, fun and funny. Flori is also on this same wave length as we all know. You gals! AWED...
You know how there are no coincidences? How we think of someone and suddenly the phone rings, after 6 mnths or more? We draw things to us. Hence, Flori Super Star, speaking for us all, ever eloquently. My Way Or The Highway, In Your Face Truth and Humor. I JUST LOVE YOU TWO! TRULY!!
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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07-10-2009, 01:24 PM
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#25
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Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
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Congratulations, Brenda! You are one of my personal heroes.
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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07-10-2009, 02:59 PM
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#26
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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congratulations!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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07-10-2009, 03:47 PM
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#27
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Man, Brenda, you are brave, Girl! Brave! I am happy for you and Flori that you are both now officially NED in your heads! Rock on!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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07-11-2009, 05:07 AM
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#28
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Senior Member
Join Date: Oct 2007
Location: Australia
Posts: 309
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Hey Brenda - talk about only the best will do! Great video, great doctor, great treatment - congratulations!!
And Flori our famous, honest movie star with ESP!!
You girls ARE amazing AND inspirational 
Blessings
Hermiracles
__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
Last edited by hermiracles; 07-11-2009 at 05:27 AM..
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07-11-2009, 06:13 PM
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#29
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Brenda
I have to say you sure know how to adjust your sails
and keep on your journey. Take care and know
we are the wind at your back. Such good news.
Take care
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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07-11-2009, 06:37 PM
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#30
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Congrats Brenda, and am sure this sucker is dust by now
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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