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Old 07-17-2013, 05:26 PM   #1
IrvineFriend
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Location: Irvine, CA (Southern CA)
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Talking Fatigue with radiation?

I'm seeing fatigue as a side effect of radiation. How much fatigue should I expect? My job has put up with this entire process, and my boss just asked what he should expect with radiation and I really couldn't answer him.

We also have a facility in Mexico that I haven't been able to get to because my onc. restricted my travel there. During chemo I ate at a salad bar for lunch, and ended up in the hosptital with a 103 (and it was still climbing) temp. that night. It's a nice hospital ... not sure if I would have gotten that level of care and good food on the other side of the border. Any issues with increased chances of infection?

This triathlon is almost over, just radiation and getting my permanent breasts on the TO DO list! I'm an optimist.
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Julie
Live in Orange County, CA

Diagnosed with DCIS Oct. 2012

Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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Old 07-17-2013, 06:53 PM   #2
jaykay
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Re: Fatigue with radiation?

I finished radiation May 22 and did find that I got somewhat tired in the afternoon. This was more at the beginning than at the end. I tried to exercise every day.

I was not told of any increase in infection risk due to radiation. I had heavy business travel scheduled (was grounded all during chemo) starting 5 days after radiation and all doctors (ro, mo) gave a thumbs up.

I'm with you - waiting for my skin to heal so I can get my permanent foobs placed!

The hard part is over (chemo). Radiation is just a grind but it does make you physically and mentally tired.

Best,
Janis
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March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 07-17-2013, 08:16 PM   #3
NEDenise
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Re: Fatigue with radiation?

Julie,
I finished radiation on Friday and left for vacation the next day. My skin looked great, just a little pink, like sunburn. I remembered to wear my lymphedema sleeve on the plane.

About 6 hours after we arrived... the blisters showed up, broke and became very painful. The theory was that the change in cabin pressure on the plane may have caused it.
By the next day, I was in major pain, taking pain killers and so exhausted I sent the fam out to do touristy things while I slept an entire day away.
The next 3 or 4 days, I was tired, and in pain, but I was able to go along... and used a wheelchair when a lot of walking was expected.

Now, as we've noticed... I'm not too lucky when it comes to this sort of thing... so you might be just fine...
but my guess is it might be wise to give yourself a week or so between finishing rads and heading off on a business trip.

No one warned me about infection, and I didn't get one.

Hope this helps!
Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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Old 07-17-2013, 08:22 PM   #4
linn65
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Re: Fatigue with radiation?

I was burnt and wore out my last week of rads. Good luck
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myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 07-18-2013, 03:03 PM   #5
tricia keegan
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Re: Fatigue with radiation?

Rads for me were a breeze after chemo and I didn't burn but did get itchy and pink, I used 100% natural aloe vera after each treatment. I know people who have rads in their lunch hour and return to work, I had major fatigue and needed to get home and rest so there's no telling how you'll react until you begin I think. There's usually no risk of infection at all, you just need to be sure not to use any creams or lotions before the treatment, good luck!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 07-18-2013, 07:39 PM   #6
karen z
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Re: Fatigue with radiation?

I am not sure you can give your boss a definitive answer as everyone is different and responds differently. I did work through radiation but was increasingly fatigued.
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Old 07-19-2013, 09:55 AM   #7
snolan
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Re: Fatigue with radiation?

Everyone is different, I didn't have any fatigue with radiation. Hope don't get any.
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dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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Old 07-19-2013, 11:56 AM   #8
bonnie
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Re: Fatigue with radiation?

I was very fatigued with chemo but when I had radiation, I felt better and better and less and less fatigued. I hope you experience the same. Of course, I did experience some burning and discomfort toward the end.
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Old 07-19-2013, 12:00 PM   #9
IrvineFriend
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Re: Fatigue with radiation?

Thanks everyone! I feel 200% after chemo ending and don't want to give up this energy! I think I'll be fine. Denise, you do have some strange luck, don't you?!

Happy Friday!!!!!
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Julie
Live in Orange County, CA

Diagnosed with DCIS Oct. 2012

Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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