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02-02-2010, 09:15 PM
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#1
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Senior Member
Join Date: May 2006
Posts: 3,142
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Kathy S. in Tokyo
Has anyone heard from Kathy S in Tokyo? I have been wondering how she has been doing. The last time she logged on to us was the end of November 2009 and the last post from her website was December 27, 2009.
I hope she is okay.
http://sugio.blogspot.com/2009/12/traditions.html |
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02-02-2010, 11:14 PM
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#2
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Kathy S. in Tokyo
I was thinking about her too. Usually in time she will check in here. Hopefully she will see this, or someone that has talked to her and let us know how she is doing?
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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02-03-2010, 12:45 AM
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#3
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Kathy S. in Tokyo
Her signature states that she was having brain surgery in early November and Gamma-knife later. I would think that she's recovering from those surgeries.
__________________
Jackie07
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02-03-2010, 06:48 AM
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#4
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Senior Member
Join Date: Oct 2005
Posts: 823
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Re: Kathy S. in Tokyo
The two post's below came from another I am on and this is what was posted.
++++++++++++++++++++++++++++++++++++++++++++++
This was posted on Jan 30, 2010
From another group we are on, please add Kathy to your prayers.
Had a call from Patricia today.She rung to speak to Kathy and she had been taken in to hospital by ambulance.
Have just spoken to 2 of her daughters and they say she was taken in around 3 or 4 am this morning by ambulance to the usual cancer centre.She had another seizure we think and complained of feeling unwell
They said that soon after she got to the hospital she said she was beginning to feel better.
She will at least be in till monday as they cannot do an mri on the weekend and they need to see the brain condition and find the cause.
No one has been in to see her as yet.I am presuming we can go into to see her but no one is too sure
She is on the 16th floor room 16A7
Patricia and I have informed Kathys parents by skype and e mail.Our thoughts are with her family.Knowing Kathy she will be bouncing back around next week atr least that is what I am praying for.
She looked well on thurs and we had lunch and a relax for a while and she got things ready for a talk on U S schools to the shoogakko kids yesterday... Just shows these things can come on quick as she looked fine then!!
Take care everyone and please post if you are going in to see her...Will update if we hear any more and please post up if you go in..Thanks and remember masks
UPDATE POSTED ON Feb 1, 2010
The ladies there say she is doing OK, eating well, looks good, but is still in the hospital. no news about the MRI results.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
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Brain MRI Feb.2006--All Clear
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Brain MRI 6-2008--All Clear
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PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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02-03-2010, 01:26 PM
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#5
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Kathy S. in Tokyo
Vicki,
Thanks for letting us know how Kathy is. I had been wondering about her too.
Amelia
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02-03-2010, 01:44 PM
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#6
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Senior Member
Join Date: May 2006
Posts: 144
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Re: Kathy S. in Tokyo
I've been following Kathy on a yahoo group.
Her MRI results showed some brain mets, so she is getting 2 weeks of WBR. Interestingly, she is staying in the hospital during the week, but allowed to go home for the weekends.I don't think that would happen in the US
The care is so different in countries. I remember Japan did not clear Herceptin and Tykerb till well after it was used in the US
Anna
__________________
- Anna
Stage I - DX 9/2005 ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis - start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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02-03-2010, 02:15 PM
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#7
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Re: Kathy S. in Tokyo
thanks everyone who is keeping us aware of Kathy's ups and downs and determination. Sending prayers her way for the WBR. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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02-03-2010, 03:40 PM
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#8
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Kathy S. in Tokyo
More brain mets? Wow !! I sure hope they get rid of those pesky things once and for all. I think she was supposed to start Tykerb towards the end of last year, but I am not sure if she did or not. I will keep my fingers crossed for Kathy. Thanks to all who shared her latest news.
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02-04-2010, 09:04 AM
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#9
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Senior Member
Join Date: May 2006
Posts: 144
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Re: Kathy S. in Tokyo
apparently Kathy had been doing Tykerb & Xeloda, but with the progression will switch to something else.
__________________
- Anna
Stage I - DX 9/2005 ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis - start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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