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Old 11-06-2009, 03:03 PM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Trt stopped, & now a wheelchair & walker...

I went up to City of Hope to see Dr. Femino (Orthopedic surgeon) about the tumor on my rt femur. He left the room & ordered a walker & wheelchair for me & said he is very concerned about it fracturing. He wants to place a rod down my femur to the knee. He also recommends radiation to the area. So I left their using a walker & only allowed to toe touch on right foot. Now I have all kinds of new pain in upper arms, shoulders, & back & you name it from using walker.

As most of you know I was scheduled to start Navelbine/Herceptin this coming Tues. But Dr. Femino woulld like to do surgery on Nov. 18th. Obviously I can't start chemo if I do the surgery unless I live in a wheelchair for months. Now I'm really stressed out. My onc & both 2nd opinion onc's wanted me to start trt soon. It's already been over 40 days since I was told of my recurrence. Now with this surgery that will make it a total of 70 plus days with no chemo other then Herceptin/Zometa. I'm very worried about all the delays in starting trt. I don't know what to do? But my hip is killing me and I know it needs repaired. But that would make it about the 2nd wk in December before I could start the Navelbine...do I dare wait that long? I hate all these decision we have to make!

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.

Last edited by Chelee; 11-06-2009 at 03:31 PM..
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