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10-10-2008, 11:51 AM
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#1
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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~Mighty Oak~Tumor Numbers Back On The Rise Again~Uggh!!
Nothing we can do at the moment because he needs a chemo break to recup, but marker sensitive Ed has TM on the rise again. I have been so depressed since returning from vacation. Today we had a conversation about doing some more travelling while he is feeling better. Before his call I was scheduling another cruise and just about to confirm these plans.
Although I asked him not to get upset about this rise, I hung up the phone in tears. If I am so very tired, I cannot imagine what he is feeling right now. I plan on going home early, taking a Xanax, making a latte and printing pictures in my p.j.'s until I fall asleep.
I do not know what else to say but I know one thing....I really need some heavy duty prayers and support right now. I know the cruise was to regroup and stay strong. Call me an idiot but I thought we would have more time without issues.
We already have a game plan to resort to if need be and although this brings some comfort to us, I am sickened by this news.
Dear Cancer,
How many times do we have to set you straight?? You are not welcomed here and never were. You are up against a person who is going to beat you down over and over again with goals to obliviate you and for all. We are sickened by your forcefullness and will fight you back ten-fold. With each action you take we shall have a reaction, we will always have the next step to take already planned, as we do now. I hope you are finally listening to what we are saying, you are wasting your time, your energy. You are not up just against my best friend, you are up against an entire force of my friends. We are here and we are just as determined to survive as you are. You do not stand a chance amongst us personally or this force behind us. We stand as one, we are here, we are just as detemined and we are Warriors. I bid you goodbye one more time, for you are not welcomed here!!
Love and Prayers>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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10-10-2008, 12:30 PM
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#2
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Senior Member
Join Date: Jun 2007
Posts: 216
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You were here for me about my lovely husband through the bad and good news as it is now for him and believe me you are both in my thoughts and prayers tonight.
Me and stuart wish you so much goodwill and support and I am sure everyone else on this site does as well. My heart goes out to you.
Janie
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10-10-2008, 12:42 PM
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#3
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Senior Member
Join Date: Aug 2006
Posts: 492
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What goes up, must come down......! And come down with a mighty crash~ that is my hope!
Wishing you and Ed many more happy cruises and happy moments. Best to you.
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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10-10-2008, 12:54 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Marie, sweet Marie,
Well said in your letter - I hope that dumb cancer gets the message.
I am sending my strongest prayers for you and Ed. Strong loving comfort and strength for you both. And I am getting little stern with the great Healer who I know is listening and can take it. Enough!
Sweet dreams
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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10-10-2008, 12:57 PM
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#5
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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I join Margerie in wishing you lots of more cruises and years of victories. I know it must be so very hard to receive this news and have to go on offense once more to battle this horrible disease. I'll keep on praying for you and Ed and all the others who may get down, but always rise again to do another day's battle. May you receive the strength, wisdom, and courage to fight hard once more. Much love,
ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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10-10-2008, 12:57 PM
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#6
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Marie,
I will be praying for the Mighty Oak and you. I hope you have a good weekend.
Amelia
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10-10-2008, 01:16 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Im sending healing prayers ... for both of you.
maria
__________________
--------------
Dx'd 8/04 at 41
Stage 1 for some onc's; Stage II for others (if you add up the sizes of all tumors).
Infiltrating DCIS
HER2+, ER+10% & PR-
.9cm tumor not visible on mammo, but palpable; visible on ultrasound
Lumpectomy/ clear margins, no nodes
Had Breast MRI after lumpectomy that revealed two more tumors in same quadrant(.4cm and 1.6cm) that were not visible on either mammo or ultrasound.
Re-excision
DD AC+T; Herceptin one year
Rads
NED/Taking Tamoxifen reluctantly
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10-10-2008, 02:46 PM
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#8
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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me too
Count me in Marie and Ed and maybe we can do a mass mailing with fed ex on your letter! Oaks are hardy, as you know! Take care of yourself as well as you do Ed, you both deserve it!
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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10-10-2008, 02:50 PM
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#9
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Senior Member
Join Date: May 2008
Posts: 118
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markers
Hey Marie, i will definitly keep you both in my prayers. I am really happy you enjoyed your cruise. I only have 36 days to go before I board the Carnival Glory. I still have to get a biopsy done on my hip, but hell or high water I am going on my cruise. I will keep you and ed in my thoughts, Hugs and Blessings, Jeanette
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10-10-2008, 02:50 PM
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#10
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Senior Member
Join Date: Oct 2007
Location: Portage, IN
Posts: 198
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Damn...I am tired of this cancer visiting Ed. GO AWAY!!!!!!!!!!!!!!!!!!!!
__________________
10/15/07: Diagnosed at age 46 lymph node removal (2)
ER/PR - Her2 +++
11/07: Port Installed
11/07 - 1/08: AC
1/30/08: Right Mast Stage lllC
2/28/08: Start Taxol and Herceptin weekly.
5/15/08: Finished Taxol
8/12/08: Finished 33 Rads
1/29/09: Finished Herceptin
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10-10-2008, 02:54 PM
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#11
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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I'm here for you Ed and Marie. Prayers and strength being sent your way.
Karen
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10-10-2008, 03:01 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: Ohio
Posts: 212
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(((Marie))) I'm so sorry to hear of your latest worries. I'll be keeping you and Ed in my thoughts and prayers
__________________
Audrey
diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
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10-10-2008, 03:28 PM
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#13
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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I read your post with tears in my eyes, I know what it is like to keep climbing the roller coaster ride with cancer. My heart goes out to you and I am sending hugs and prayers your way. I just found out my son-in-law (who is battling melanoma) and on interferon was told today his treatment isn't working. I don't think there are any more tricks in the bag for him. He is only 35. It just devastes me. I have found 7 clinical trials for him to try to get into, but he is resistant. Anyway I feel your pain and frustration!
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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10-10-2008, 03:43 PM
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#14
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Marie:
I am sorry to hear about the numbers. I know how hard it is for you and your beloved husband. Please know that you are in our hearts and prayers.
Lee and Colleen
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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10-10-2008, 03:49 PM
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#15
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Oh Marie, I am so sorry that this is happening...you both are so strong, and filled with faith and love, you WILL overcome this setback and be able to go on many more cruises and spend lots of time being in love....my prayers are with you both....stay strong!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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10-10-2008, 04:00 PM
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#16
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Maire,
Sending arrow prayers straight to heaven for you and Ed.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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10-10-2008, 04:35 PM
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#17
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Marie, I'm really sorry to hear about Ed's TM rise. You guys hang in there, sweetie. You will be in my thoughts and prayers.
__________________
For Nicola
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10-10-2008, 07:34 PM
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#18
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Senior Member
Join Date: Oct 2005
Posts: 823
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Marie sending many, many prayers for Ed and you. Please know you are both in my heart.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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10-10-2008, 07:46 PM
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#19
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Prayers from Canada for you and Ed, dear Marie.
all the best,
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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10-10-2008, 07:54 PM
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#20
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Prayers from me for your "mighty oak",Marie! Wish I could wave that darned anti cancer magic wand....sigh...
Marcia
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