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03-04-2007, 03:54 PM
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#1
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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4 1/2 months past herceptin
I just wanted to start a post to see how those of us who are some months past herceptin are doing. I am 4 1/2 months out - finished on October 11, 2006 and feeling good. I did start with a left side/rib ache in October of 2005 while on chemo and that did seem to be aggravated more so while on herceptin. I still have that issue but am thinking it's just a "side effect" from all my body has been through. I did have a pet/ct scan the end of December 2006 and all is fine so we know that it isn't cancer. Also, it is a sporadic ache. Some days worse than others - somedays not at all and then somedays very annoying. Never while I sleep or wake in the night and never when I get up.
The good news...........I'm down 15 pounds since herceptin is over and FINALLY feel I have my body back. That is a great feeling. My hair is awesome and I feel really good. My nails are still ridgy and tear easily BUT I do have my hands in water every day at work so I suppose I could blame some of that on that.
Overall, I feel good. It's good to have that bloated/fat feeling behind me (well, not really BEHIND me - hahaha) but gone.
Let us know how you are doing as well.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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03-04-2007, 04:59 PM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Mary Jo
I am so happy for you....I would love the benefit of losing the 20 pounds I have accumulated with Herceptin....but I don't know if I'll ever be off it.....You are an inspiration...maybe someday I'll get to shed the weight!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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03-04-2007, 05:06 PM
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#3
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Senior Member
Join Date: Oct 2005
Posts: 215
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Past herceptin
I too finished Herceptin last October. I feel really well and have also gained a few pounds that I would like to lose. Had my six month mammo and an ultrasound two weeks ago. Had to have a ultra sound biopsy done and will get the results on tuesday when I see my surgeon. He does not seem too concerned, just being cautious I guess. Anyway, good luck to all us ladies and hopefully we will be cancer free,Jeanette
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03-04-2007, 05:33 PM
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#4
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Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
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Hi, I was on herceptin from 11/05-11/06 and cancer returned with a vengence. I will be starting Tykerb/Xeloda next week.
I am so happy for you 
Alway great to hear that someone is in the clear and hope you remain that way.
This is my 5th time around.
Betty
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
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03-04-2007, 06:11 PM
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#5
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Senior Member
Join Date: Oct 2005
Posts: 115
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I was on herceptain 11/05 to 11/1/06 and was misserable - exstatic to report - most of the stymptoms - aches, pains, ADD . stiffness, runny nose etc.. have pretty much abated. It is the weight gain that has not - could be attributed to the lupron shots I have beentaking since 11/05 along with the arimidex - up 12 pounds and depperately trying to loose - every doc says it is a side effect of forced menapaus .. I'll deal ith it if thats all.
Had digital mamo in december all clear- MRI scheduled for June - keeping my fingers crossed.
Diagnosis 9/14/ 05 at age 43
lumpectomy 10/5/05
Tamoxifen
Herceptain 11/05 for 1 year
Lupron 12/05
switched to arimidex same day as starting lupron.
Stage 1
Susanne |
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03-04-2007, 08:36 PM
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#6
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Herceptin
I was on Herceptin from 2/04 to 2/07. I just quit Navelbine a month ago (with the Herceptin) and am now awaiting what may be next. I tried a Tykerb-like drug but had severe symptoms. I am feeling mixed emotions being off the Herceptin, but also happy that the symptoms it caused are fading slowly. Let us know how the Xeloda?tykerb does for you....I think that may be next for me, but I have to wait for FDA approval as I had no A/C. Love and good thoughts, Vickie
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03-04-2007, 08:44 PM
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#7
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Hi all,
Finished end of Nov 06. Leaky nose is almost gone. Nails are still tore up and down to the quick. Diarrhea is subsiding. Eyes seem to be getting worse. Feel good otherwise.
Gained 5# since finishing but I suspect it's the holidays and girl scout cookies.
Hpe you find something that works for you Betty.
Bev
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03-04-2007, 08:47 PM
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#8
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Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
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I will keep you posted on my treatment. I am so happy that they are both in a "PILL" form. No trips to office for I.V. drips...Has your cancer returned or are they looking at prevenative treatment?
Hugs, Betty
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
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03-04-2007, 08:51 PM
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#9
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Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
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Hi Bev, thanks for your thoughts. Everyone seems to have gained weight while on herceptine??? I was on it for a year and did not gain any weight. However, I did gain 35-40 pounds while I was on A/C, but I lost it within 3 months.
Betty
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
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03-05-2007, 09:58 AM
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#10
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Marejo,
Congratulations on finishing Herceptin! I'm glad that you're feeling so much better. I have 3 months to go and can't wait!
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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03-05-2007, 10:04 AM
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#11
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Congratulations on finishing your treatment. I know the weight loss feels good. I am still on herceptin, but I have lost 15 lbs. after finishing treatment with Taxotere. I am beginning to feel somewhat human again. Best wishes and I hope that you never need treatment again! Here is to being cancer free.
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