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Old 08-22-2014, 10:55 AM   #1
LeahM
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Join Date: May 2012
Location: Bethlehem PA
Posts: 395
Am I crazy to keep my ovaries

Hi All,

I am going to try to keep a long story short...

In my family only one other woman on my mothers side had BC. My grandmother. Age about 50 had a mastectomy and rads (don't know if she had hormone suppressors or not) and live another 30+ years. During that times she had a complete hysterectomy (for unkown reason) and they found cancer in her uterus. Once the uterus was out so was the cancer..no treatment.

My mom, her aunts, cousins etc all had complete hysterectomies before the age of 40 for reasons not related to cancer. And thus far none of them have had cancer of any type.

So I worry about my uterus. I'm BRCA 1,2 negative.

5% ER+. My onc told me that 15 years ago they would have considered me ER-. I'm on Tamoxifen and don't have any problems with it.

I have discussed at length with my GYN (who I credit with saving my life) the pros and cons of a complete hysterectomy at this point.

IMHO the cons outweigh the pros.

But she wants to take my uterus out.

Says Tamox increases your risk of uterine CA and I have had some crazy crazy crazy periods since it came back. I have had uterine u/s because of that but nothing has been seen. I can go months without a period and then bleed for 3. solid. weeks. 3!!

She says taking out my uterus will stop my periods (yay) without putting me into early menopause (again yay).

Throughout this time of mine spent in cancerland my ER status hasn't been a huge concern of mine, not as huge as my HER2 status.

So I have agreed to remove my uterus...early in 2015 and keep my ovaries (for now). I'm hoping I don't regret this in another 15 years.

Has anyone else had just their uterus removed? Do you think I'm off my rocker for keeping my ovaries?

Your thoughts on this are very welcome.
Thanks
Leah
__________________
39 year old wife, mother of one and nurse.
April 20, 2012: Dx Invasive Ductal Carcinoma
April 25, 2012: ER+(5%), PR-, HER2+++
May 10, 2012: BRCA 1,2 Negative
May 23, 2012: MUGA Scan EF 70%
May 31, 2012: B/L Mastectomy. 2/2 nodes removed and CLEAR!! Power Port placed. 2 Drains. 2 Expanders placed
June 5, 2012: Drains OUT! Ahhhh..
June 12, 2012: Final Pathology Report, .8x.3cm tumor. Micromets to 1 node .35mm under cytokeratin staining. Stage 2A. Onc says "you are lucky to have found this early"
July 10, 2012: Started 6 rounds of TCH with weekly H
Sept 5, 2012: MUGA 65%
Sept 20, 2012: CAT scan of brain clear!
Oct 23, 2012: LAST TC! AMEN! Continue Herceptin every three weeks until July 2013.
Nov 19, 2012: Port out!
Dec 5, 2012: Started radiation
Dec. 10, 2012: MUGA 65%
Dec. 13, 2012: Turned 40. BEST BIRTHDAY EVER!
Jan 23, 2013: Last radiation. Told I am NED. Continue Herceptin every three weeks till July 2013.
Jan 29, 2013: Begin 5 years of Tamoxifen.
Feb 28, 2013: CT Scan with Contrast of lungs. 5mm and 4mm nodules of unknown origin. Rescan in 3 months.
Mar 6, 2013: EF 60%
May 8, 2013: Exanders out, implants implanted...abd. lipo and fat moved up. Girls are looking good!
June 3, 2013: CT Scan with Contrast of lungs. Previous nodules gone. New nodules (2mm and 3mm) found. Rescan in 3 months. So sorry I opened this can of worms...
June 11, 2013: EF 60%
June 25, 2013: Last Herceptin. wow...
Aug 20, 2013: Tumor markers within normal limits. Xray to sore left ribs shows no disease or fractures.
Sept 9, 2013: CT of lungs shows no disease. Closing this can of worms and moving on.
Nov 20, 2013: Tumor markers within normal limits. Severe Vit D deficiency, started on prescription Vit. D. Blaming chemo for this.
Feb 2014: Tumor markers within normal limits.
May 2014: Tumor markers within normal limits. Graduated to twice yearly onc appts.
Oct 2014: Tumor markers within normal limits.
May 2015: Tumor markers WNL. Bone density scan fine. Bone scan and xray of ribs shows "something" 4th right rib. Could be healed fracture but if it is healed why does it hurt?
Nov 2015: Tumor markers WNL. Follow up bone scan clear.
Feb 2016: Syncope! WTF? Dizzy too. Brain scan clear, ECHO EF 60%, Halter Monitor shows heart is fine. Viral? I will never know.
June 2016: Tumor markers WNL.
Oct 2016: Stabbing pain right eye. Long story short, trigeminal neuralgia.
Nov 2016 Brain MRI clear.
Jan 2017: Tumor markers WNL, still getting weird pain right rib area, and sometimes right upper chest. Xray x2, Bone Scan, Breast MRI all clear. Scar tissue? Rads. I may never know.
www.onmywaytosurvivorhood.blogspot.com
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